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Oi, sou o Joseph Scamardo,[br]professor assistente de filosofia

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e diretor associado do [br]Instituto de Assuntos Públicos

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na Universidade Estadual de San Diego.

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Sou especializado em Filosofia[br]de Deficiência e Bioética.

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Eu também sou uma pessoa com deficiência .

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Tenho uma lesão na medula espinhal,

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assim como um tipo raro de nanismo,

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então sou “dois em um”.

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Bem, minha primeira lembrança [br]de discriminação foi...

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Bem, é difícil dizer...

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Eu lembro de muitas experiências

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com preconceito ou intolerância,

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geralmente sobre do meu nanismo.

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E, sabe,

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tenho várias memórias antigas sobre isso,

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com crianças encarando e rindo,

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coisas desse tipo, desde muito cedo.

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Então, tanto quanto, um tipo de

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discriminação mais sistemática

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que meio me excluía de algo

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que eu queria fazer.

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Eu tive uma ótima infância,

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porque meus pais realmente fizeram muito

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para garantir que eu fosse incluso.

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Me lembro de fazer parte dos escoteiros

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e lobinhos, enquanto criança,

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e meu pai fazia muitas coisas

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para garantir a inclusão [br]da minha deficiência

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Ele ia em acampamentos comigo

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e meio que agia como um cuidador,

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esse tipo de coisa, para ter certeza

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de que eu seria capaz de ir[br]e participar de coisas assim.

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E então, a primeira experiência real

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de exclusão que eu consigo lembrar

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aconteceu quando chegou a hora[br]de ir para o ensino médio.

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Eu estudei em escolas publicas,

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na minha cidade, até a 8° série

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e depois quando chegou o ensino médio

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eu, era para eu ir para a mesma

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escola particular, do tipo religiosa,

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que meus irmãos mais velhos estudaram,

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e eu fiz uma prova para entrar

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e até ganhei uma pequena bolsa de estudo

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mas não tinha elevador lá,

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então eu usava uma scooter motorizada

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para me locomover,

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e seria impossível para mim,

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estudar naquela escola, [br]porque não tinha elevador.

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Na verdade, isso foi depois [br]da implementação da ADA

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mas como era uma escola religiosa

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estava isenta das normas da lei ADA

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Então, eu não tive [br]nenhuma ajuda dessa lei,

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para conseguir com que eles [br]adaptassem para mim

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então acabei indo para a escola pública [br]da minha cidade

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o que, na verdade, me deixou feliz

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porque era lá que todos [br]os meus amigos estudavam.

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Mas isso meio que me mostrou

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o fato de que

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nem tudo é acessível,

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nem tudo é projetado para mim

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e que isso seria algo com o qual [br]eu teria que lidar

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por toda a minha vida.

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E sobre...

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lembrar da ADA

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e sua aprovação, esse tipo de coisa,

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eu era bem novo quando ela foi aprovada,

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às vezes se referem a mim como parte

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da geração ADA, o que significa

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que, em grande parte, [br]eu meio que cresci com a ADA.

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Eu nasci em 1982,

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então eu tinha 8 ou 9 anos [br]quando a ADA foi aprovada.

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Então eu não tenho [br]muitas lembranças do tipo, "Aha!

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Esse foi o momento que foi aprovada."

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Eu não lembro onde [br]eu estava naquele dia,

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ou algo do tipo.

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Mas lembro do meu pai [br]explicando ela pra mim,

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mais ou menos na época [br]em que comecei o ensino médio.

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Quando tive essa experiência [br]com aquela escola católica

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e passar por essa experiência [br]de discriminação sistemática.

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Ele explicou que escolas públicas,

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e outros tipos de lugares públicos

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eram acessíveis pra mim [br]por causa da ADA

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e que havia essa lei que dizia [br]que as coisas deveriam

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ser acessíveis para pessoas

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que usam cadeiras de rodas [br]e scooters motorizadas, como eu usava.

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Então, essa foi a primeira vez [br]que fiquei ciente da ADA,

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e também da discriminação.

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O que é meio legal, eu acho.

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Porque foi legal ter aquela experiência

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de "OK, isso será desafiador para você,"

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"e é assim que você é protegido,"

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"é assim que você pode [br]fazer algo sobre isso."

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Então, de alguma forma, isso meio que foi

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meu despertar dentro do ativismo também.

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Agora, sobre a diferença que a ADA[br]tem feito na minha vida,

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ou na vida de outros...

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Eu acho que isso tem sido,

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claro, uma lei incrivelmente importante

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que tem dado todos os tipos[br]de oportunidades às pessoas.

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Desde transporte público, para poder [br]se locomover pela sua comunidade.

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Decisões sobre moradia [br]são baseadas na ADA,

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que diz que as pessoas devem ser...

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quando precisam de cuidado de longo prazo,

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e serem atendidas [br]em ambientes menos restritos,

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ou seja, você não pode [br]simplesmente internar alguém

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porque é conveniente para você.

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É preciso garantir que eles consigam [br]viver em comunidade,

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ou algum lugar que seja [br]o melhor para eles.

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O que mais a ADA fez?

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Conseguir...

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ter uma educação, um trabalho,

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todas essas coisas, para mim e para outros

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ocorreram por causa da ADA.

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E eu nem consigo imaginar [br]como era antes dela, sinceramente.

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Quer dizer, eu posso imaginar,

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mas fico feliz por não precisar[br]passar por isso.

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A ADA faz a diferença

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em muitas experiências pessoais

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e em muitas

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questões políticas sobre deficiências.

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Minha...

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experiência pessoal

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mais recente que foi afetada pela ADA

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foi...

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conseguir viver de forma independente

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com meus dois filhos.

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Acho que antes da ADA, [br]teria sido muito mais difícil.

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Criar meus filhos significa que tenho [br]que ir a vários lugares públicos

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e fazer coisas que eu talvez [br]não precisaria fazer

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a trabalho, ou no dia a dia, [br]se eu não tivesse eles.

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Então, ir ao zoológico, ao mercado [br]para algo de última hora...

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ou, sabe...

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O que quer que seja.

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Acho que, sabe...

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ao abrir creches, etc.,

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a ADA meio que tornou tudo isso [br]acessível pra mim,

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como alguém que usa cadeira de rodas.

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Dessa forma, causou [br]um grande impacto na minha vida,

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recentemente.

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Agora, uma coisa que posso [br]mencionar, profissionalmente,

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sobre a ADA

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e seu impacto, ou falta dele,

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é, provavelmente,

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tem duas partes.

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Uma é as formas em que

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meu privilégio,

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como pessoa com deficiência física,

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há uma hierarquia [br]entre as deficiências, claro.

0:09:03.226,0:09:07.196
E deficiência física geralmente [br]está no topo desta hierarquia.

0:09:07.196,0:09:10.611
Transtornos mentais

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e deficiências intelectuais

0:09:13.104,0:09:15.344
estão um pouco abaixo dessa hierarquia.

0:09:15.344,0:09:19.098
Então, como homem branco [br]com deficiência física,

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cisgênero e heterossexual,

0:09:22.988,0:09:27.984
Fui mais beneficiado pela ADA [br]do que muitas pessoas

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que não têm esses tipos de privilégios.

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Acho que, por exemplo,

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como a ADA foi projetada

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