[Script Info]
Title: 
[Events]
Format: Layer, Start, End, Style, Name, MarginL, MarginR, MarginV, Effect, Text
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,You'll see in the corner the record button
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,So you should see that it's recording now,
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,and I'm going to mute myself now, and
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,you'll go ahead and do your intro. Thank
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,you Marcie. Hi there, I'm Marcie Roth, and
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,I have been workign in disability rights
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,for my whole adult life, since I was a
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,freshman in high school. I am currently
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,the executive director and CEO of the
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,World Institute on Disability and I have
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,been working over the years and services
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,for people living in residential programs
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,early in my career with people in with
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,children in school settings, people in
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,vocational rehabilitation, and then people
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,in community living environments, then
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,along the way, I became very involved in
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,disability rights and very involved in
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,the early days of advocacy before
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,the ADA was introduced. And then I worked
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,for disability advocacy organizations
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,almost ever since. In addition to my own
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,disability, I'm also the parent of two now
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,adults with disabilities. My husband also
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,has a disability and much of my family
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,also happen to be people with disabilities
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,so disability rights is just part of
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,everything I am and most everything I do.
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,I did spend from 2001 and onward focusing
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,very much on what happens to people
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,with disabilities before, during, and
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,after disasters. And that's been a real
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,particular laser focus of mine ever since
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,and in fact, I've had the opportunity
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,as an appointee in the Obama
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,administration to spend just about 8 years
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,at FEMA, establishing FEMA's Office of
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,Disability Integration Coordination and
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,building a cadre of disability experts of
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,the same pond, supporting governors and
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,emergency managers and most particularly
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,engaging people with disabilities and
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,disability organizations in emergency
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,preparedness and throughout disaster
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,response recovery and mitigation. So one
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,last piece since I've been with the World
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,Institute on Disability since last
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,September, my ongoing focus on global
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,disability rights has really been
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,something that I've had much more
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,opportunity to been actively involved in
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,and I have spent the time since joining
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,WID building a strategic planning process
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,and supporting the organization to
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,establish new priorities, taking a look at
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,the organization's mission, and very
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,recently establishing for particular areas
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,of focus for the organization as we move
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,forward. Thank you Marcie. Excellent, okay
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,I apologize that my neighbor is chipping a
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,lot of brush today, so it's making a lot
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,of extra sound whenever I unmute, but
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,don't worry, it won't interfere with your
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,recording. Okay, so the first question is
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,about the past. So tell of your first
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,memory realizing that there were
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,accessibility issues, discrimination, or
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,lack of inclusion. What is your personal
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,story or connection with the American with
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,Disabilities Act? What do you remember
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,about the day that it was signed, if
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,applicable? And what was the impact on
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,you and on others? Remember to tap
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,something so that the camera shifts to you
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,before you start.
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,I first became aware of disability at a
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,very young age. I had a best friend in
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,first grade. His name was Gregory, and he
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,and I were just wonderful friends. We
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,spent a lot of time together, and then all
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,of a sudden, one day Gregory was gone
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,and I didn't know what happened to him or
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,where he went and it wasn't until many
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,years later that I found out that Gregory
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,had Down Syndrome, and he had been removed
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,from my kindergarten class and first
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,grade I think it was at that point. And
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,apparently he had been sent to some other
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,school, somewhere. And the loss of his
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,friendship was pretty surprising and
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,I didn't understand you know where he went
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,Looking back on it, it was kind of
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,peculiar that we didn't just get to still
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,be friends 'cause he didn't move away, he
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,just stopped going to my school. But I
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,remember just being confused and then just
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,over the next number of years, I lived in
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,a town that was also the home of Save the
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,Children, and I was always very interested
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,in the work that Save the Children was
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,doing and I am embarrassed to admit that
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,my earliest involvement in humanitarian
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,work was from a very charity-model
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,approach, and I spent a lot of my
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,childhood raising money for Save the
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,Children and getting involved in other
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,activities that were very much following
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,the charity-pity model and certainly not a
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,model that uh making space for and lifting
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,up other people with disabilities. The
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,onset of my disability wasn't until many
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,years later, but when I was in high school
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,I had the, I had a requirement to do