[Script Info]
Title: 
[Events]
Format: Layer, Start, End, Style, Name, MarginL, MarginR, MarginV, Effect, Text
Dialogue: 0,0:00:00.78,0:00:04.89,Default,,0000,0000,0000,,Let's put the care back into healthcare.
Dialogue: 0,0:00:04.89,0:00:08.71,Default,,0000,0000,0000,,I've been working in the healthcare sector\Nfor the last 15 years,
Dialogue: 0,0:00:08.71,0:00:11.04,Default,,0000,0000,0000,,and one of the things\Nthat drew me to this sector
Dialogue: 0,0:00:11.04,0:00:15.28,Default,,0000,0000,0000,,was my interest in the care component\Nof our healthcare systems,
Dialogue: 0,0:00:15.28,0:00:18.19,Default,,0000,0000,0000,,more specifically to the invaluable role
Dialogue: 0,0:00:18.19,0:00:20.17,Default,,0000,0000,0000,,played by carers.
Dialogue: 0,0:00:20.17,0:00:22.63,Default,,0000,0000,0000,,Now, how many of you in this room\Nconsider yourself a carer?
Dialogue: 0,0:00:22.63,0:00:29.21,Default,,0000,0000,0000,,By this I mean, how many of you\Nhave cared for someone
Dialogue: 0,0:00:29.21,0:00:33.08,Default,,0000,0000,0000,,suffering from an illness,\Ninjury or disability?
Dialogue: 0,0:00:33.08,0:00:35.20,Default,,0000,0000,0000,,Can you raise your hand\Nif this is the case?
Dialogue: 0,0:00:37.34,0:00:39.54,Default,,0000,0000,0000,,About half of the room.
Dialogue: 0,0:00:39.54,0:00:41.87,Default,,0000,0000,0000,,I want to thank all of you\Nwho raised your hands
Dialogue: 0,0:00:41.87,0:00:44.06,Default,,0000,0000,0000,,for the time that you've spent as a carer.
Dialogue: 0,0:00:44.06,0:00:46.86,Default,,0000,0000,0000,,What you do is extremely precious.
Dialogue: 0,0:00:46.86,0:00:50.20,Default,,0000,0000,0000,,I am a former cared for patient myself.
Dialogue: 0,0:00:51.10,0:00:54.10,Default,,0000,0000,0000,,When I was a teenager,\NI suffered from Lyme disease
Dialogue: 0,0:00:54.10,0:00:58.06,Default,,0000,0000,0000,,and underwent 18 months\Nof antibiotic treatment.
Dialogue: 0,0:00:58.06,0:01:00.55,Default,,0000,0000,0000,,I was repeatedly misdiagnosed:
Dialogue: 0,0:01:00.55,0:01:05.15,Default,,0000,0000,0000,,bacterial meningitis,\Nfibromyalgia, you name it.
Dialogue: 0,0:01:05.15,0:01:07.27,Default,,0000,0000,0000,,They couldn't figure it out,
Dialogue: 0,0:01:07.27,0:01:10.86,Default,,0000,0000,0000,,and if I'm standing here\Nin front of you today,
Dialogue: 0,0:01:10.86,0:01:12.28,Default,,0000,0000,0000,,it's because I owe my life
Dialogue: 0,0:01:12.28,0:01:16.35,Default,,0000,0000,0000,,to the stubbornness\Nand commitment of one carer.
Dialogue: 0,0:01:16.35,0:01:18.34,Default,,0000,0000,0000,,He did everything he could for me,
Dialogue: 0,0:01:18.34,0:01:21.83,Default,,0000,0000,0000,,driving long distances\Nfrom one treatment center to another,
Dialogue: 0,0:01:21.83,0:01:24.52,Default,,0000,0000,0000,,searching for the best option,
Dialogue: 0,0:01:24.52,0:01:27.27,Default,,0000,0000,0000,,and above all never giving up,
Dialogue: 0,0:01:27.27,0:01:29.47,Default,,0000,0000,0000,,despite the difficulties he encountered,
Dialogue: 0,0:01:29.47,0:01:33.08,Default,,0000,0000,0000,,including from a work\Nand quality-of-life perspective.
Dialogue: 0,0:01:33.08,0:01:34.80,Default,,0000,0000,0000,,That was my father.
Dialogue: 0,0:01:34.80,0:01:39.76,Default,,0000,0000,0000,,I recovered, and this is largely\Nthanks to his dedication.
Dialogue: 0,0:01:39.76,0:01:43.64,Default,,0000,0000,0000,,This experience turned me\Ninto a patient advocate.
Dialogue: 0,0:01:43.64,0:01:48.40,Default,,0000,0000,0000,,The closer I looked, the more I saw\Ncarers providing the same kind of support
Dialogue: 0,0:01:48.40,0:01:50.73,Default,,0000,0000,0000,,that my father provided to me,
Dialogue: 0,0:01:50.73,0:01:54.56,Default,,0000,0000,0000,,and playing a crucial role\Nin the healthcare system.
Dialogue: 0,0:01:54.56,0:01:57.33,Default,,0000,0000,0000,,I don't think it's an exaggeration to say
Dialogue: 0,0:01:57.33,0:01:59.60,Default,,0000,0000,0000,,that without informal carers like him,
Dialogue: 0,0:01:59.60,0:02:02.20,Default,,0000,0000,0000,,our health and social systems
Dialogue: 0,0:02:02.20,0:02:04.32,Default,,0000,0000,0000,,would crumble.
Dialogue: 0,0:02:04.32,0:02:08.100,Default,,0000,0000,0000,,And yet, they're largely\Ngoing unrecognized.
Dialogue: 0,0:02:08.100,0:02:12.69,Default,,0000,0000,0000,,I am now a long-distance\Ncarer for my mother,
Dialogue: 0,0:02:12.69,0:02:16.15,Default,,0000,0000,0000,,who suffers from multiple\Nchronic conditions.
Dialogue: 0,0:02:16.15,0:02:19.95,Default,,0000,0000,0000,,I understand, now more than ever,
Dialogue: 0,0:02:19.95,0:02:23.18,Default,,0000,0000,0000,,the demands that caregivers face.
Dialogue: 0,0:02:23.18,0:02:25.33,Default,,0000,0000,0000,,With aging populations,
Dialogue: 0,0:02:25.33,0:02:27.23,Default,,0000,0000,0000,,economic instability,
Dialogue: 0,0:02:27.23,0:02:29.32,Default,,0000,0000,0000,,healthcare system stress,
Dialogue: 0,0:02:29.32,0:02:32.87,Default,,0000,0000,0000,,and increased incidents\Nof long-term chronic care needs,
Dialogue: 0,0:02:32.87,0:02:35.61,Default,,0000,0000,0000,,the importance and demands\Non family caregivers
Dialogue: 0,0:02:35.61,0:02:38.24,Default,,0000,0000,0000,,are greater than ever.
Dialogue: 0,0:02:38.24,0:02:41.66,Default,,0000,0000,0000,,Carers all over the world\Nare sacrificing their own physical,
Dialogue: 0,0:02:41.66,0:02:45.49,Default,,0000,0000,0000,,financial, and psycho-social wellbeing
Dialogue: 0,0:02:45.49,0:02:47.72,Default,,0000,0000,0000,,to provide care for their loved ones.
Dialogue: 0,0:02:47.72,0:02:50.15,Default,,0000,0000,0000,,Carers have their own limits and needs,
Dialogue: 0,0:02:50.15,0:02:52.56,Default,,0000,0000,0000,,and in absence of adequate support,
Dialogue: 0,0:02:52.56,0:02:56.31,Default,,0000,0000,0000,,many could be stretched\Nto the breaking point.
Dialogue: 0,0:02:56.31,0:03:00.43,Default,,0000,0000,0000,,Once seen as a personal\Nand private matter in family life,
Dialogue: 0,0:03:00.43,0:03:03.96,Default,,0000,0000,0000,,unpaid caregiving has formed\Nthe invisible backbone
Dialogue: 0,0:03:03.96,0:03:08.85,Default,,0000,0000,0000,,of our health and social systems\Nall over the world.
Dialogue: 0,0:03:08.85,0:03:11.21,Default,,0000,0000,0000,,Many of these carers\Nare even in this room,
Dialogue: 0,0:03:11.21,0:03:13.16,Default,,0000,0000,0000,,as we have just seen.
Dialogue: 0,0:03:13.16,0:03:16.76,Default,,0000,0000,0000,,Who are they, and how many are they?
Dialogue: 0,0:03:16.76,0:03:18.81,Default,,0000,0000,0000,,What are the challenges\Nthat they are facing?
Dialogue: 0,0:03:18.81,0:03:22.82,Default,,0000,0000,0000,,And, above all, how can we make sure\Nthat their value to patients,
Dialogue: 0,0:03:22.82,0:03:27.32,Default,,0000,0000,0000,,our healthcare system,\Nand society is recognized?
Dialogue: 0,0:03:27.32,0:03:30.53,Default,,0000,0000,0000,,Anyone can be a carer really:
Dialogue: 0,0:03:30.53,0:03:32.01,Default,,0000,0000,0000,,a 15-year old girl caring\Nfor a parent with multiple sclerosis;
Dialogue: 0,0:03:32.01,0:03:38.14,Default,,0000,0000,0000,,a 40-year old man juggling full-time work
Dialogue: 0,0:03:38.14,0:03:42.10,Default,,0000,0000,0000,,while caring for his family\Nwho lives far away;
Dialogue: 0,0:03:42.10,0:03:46.40,Default,,0000,0000,0000,,a 60-year old man caring for his wife\Nwho has terminal cancer;
Dialogue: 0,0:03:46.40,0:03:49.62,Default,,0000,0000,0000,,or an 80-year old woman\Ncaring for her husband
Dialogue: 0,0:03:49.62,0:03:52.28,Default,,0000,0000,0000,,who has Alzheimer's disease.
Dialogue: 0,0:03:52.28,0:03:56.19,Default,,0000,0000,0000,,The things carers do\Nfor their patients are varied.
Dialogue: 0,0:03:56.19,0:03:57.91,Default,,0000,0000,0000,,They provide personal care,
Dialogue: 0,0:03:57.91,0:03:59.78,Default,,0000,0000,0000,,like getting someone dressed,
Dialogue: 0,0:03:59.78,0:04:01.66,Default,,0000,0000,0000,,feeding them,
Dialogue: 0,0:04:01.66,0:04:03.33,Default,,0000,0000,0000,,helping them to the bathroom,
Dialogue: 0,0:04:03.33,0:04:06.04,Default,,0000,0000,0000,,helping them move about.
Dialogue: 0,0:04:06.04,0:04:09.33,Default,,0000,0000,0000,,They also provide a significant\Nlevel of medical care,
Dialogue: 0,0:04:09.33,0:04:12.97,Default,,0000,0000,0000,,because they often know a lot about\Ntheir loved one's condition and needs,
Dialogue: 0,0:04:12.97,0:04:17.07,Default,,0000,0000,0000,,sometimes better\Nthan the patients themselves,
Dialogue: 0,0:04:17.07,0:04:21.51,Default,,0000,0000,0000,,who may be paralyzed\Nor confused by their diagnosis.
Dialogue: 0,0:04:21.51,0:04:24.20,Default,,0000,0000,0000,,In those situations,
Dialogue: 0,0:04:24.20,0:04:28.27,Default,,0000,0000,0000,,carers are also advocates for the patient.
Dialogue: 0,0:04:28.27,0:04:31.98,Default,,0000,0000,0000,,Also of critical importance
Dialogue: 0,0:04:31.98,0:04:36.85,Default,,0000,0000,0000,,is the fact that carers\Nalso provide emotional support.
Dialogue: 0,0:04:36.85,0:04:39.27,Default,,0000,0000,0000,,They organize doctor's appointments,
Dialogue: 0,0:04:39.27,0:04:41.22,Default,,0000,0000,0000,,they manage finances,
Dialogue: 0,0:04:41.22,0:04:45.30,Default,,0000,0000,0000,,and they also deal\Nwith daily household tasks.
Dialogue: 0,0:04:45.30,0:04:48.94,Default,,0000,0000,0000,,These challenges are challenges\Nthat we can't ignore.
Dialogue: 0,0:04:48.94,0:04:52.27,Default,,0000,0000,0000,,There are currently\Nmore than 100 million carers
Dialogue: 0,0:04:52.27,0:04:56.78,Default,,0000,0000,0000,,providing 80 percent\Nof care across Europe,
Dialogue: 0,0:04:56.78,0:04:58.83,Default,,0000,0000,0000,,and even if these numbers are impressive,
Dialogue: 0,0:04:58.83,0:05:03.56,Default,,0000,0000,0000,,they're most likely underestimated\Ngiven the lack of recognition of carers.
Dialogue: 0,0:05:03.56,0:05:05.26,Default,,0000,0000,0000,,As we have just seen,
Dialogue: 0,0:05:05.26,0:05:08.25,Default,,0000,0000,0000,,many of you in this room weren't sure\Nif you could be qualified
Dialogue: 0,0:05:08.25,0:05:10.43,Default,,0000,0000,0000,,or considered to be a carer.
Dialogue: 0,0:05:10.43,0:05:12.53,Default,,0000,0000,0000,,Many of you probably thought\NI was referring to a nurse
Dialogue: 0,0:05:12.53,0:05:15.64,Default,,0000,0000,0000,,or some other healthcare professional.
Dialogue: 0,0:05:15.64,0:05:17.21,Default,,0000,0000,0000,,Also stunnning
Dialogue: 0,0:05:17.21,0:05:21.03,Default,,0000,0000,0000,,are the benefits that carers\Nbring to our societies,
Dialogue: 0,0:05:21.03,0:05:25.33,Default,,0000,0000,0000,,and I want to give you just one example\Nfrom Australia in 2015.
Dialogue: 0,0:05:25.33,0:05:28.98,Default,,0000,0000,0000,,The annual value\Nprovided by informal carers
Dialogue: 0,0:05:28.98,0:05:31.04,Default,,0000,0000,0000,,to those suffering from mental illness
Dialogue: 0,0:05:31.04,0:05:36.66,Default,,0000,0000,0000,,was evaluated at 13.2 billion\NAustralian dollars.
Dialogue: 0,0:05:36.66,0:05:42.31,Default,,0000,0000,0000,,This is nearly two times\Nwhat the Australian government spends
Dialogue: 0,0:05:42.31,0:05:42.73,Default,,0000,0000,0000,,on mental health services annually.
Dialogue: 0,0:05:42.73,0:05:44.05,Default,,0000,0000,0000,,These numbers, among others,
Dialogue: 0,0:05:44.05,0:05:47.51,Default,,0000,0000,0000,,demonstrate that if carers\Nwere to stop caring tomorrow,
Dialogue: 0,0:05:47.51,0:05:49.86,Default,,0000,0000,0000,,our health and social systems
Dialogue: 0,0:05:49.86,0:05:52.30,Default,,0000,0000,0000,,would crumble.
Dialogue: 0,0:05:52.30,0:05:55.08,Default,,0000,0000,0000,,And while the importance\Nof these millions of silent carers
Dialogue: 0,0:05:55.08,0:05:57.21,Default,,0000,0000,0000,,cannot be denied,
Dialogue: 0,0:05:57.21,0:05:59.12,Default,,0000,0000,0000,,they've largely been unnoticed
Dialogue: 0,0:05:59.12,0:06:02.71,Default,,0000,0000,0000,,by governments, healthcare systems,
Dialogue: 0,0:06:02.71,0:06:05.34,Default,,0000,0000,0000,,and private entities.
Dialogue: 0,0:06:05.34,0:06:09.100,Default,,0000,0000,0000,,In addition, carers are facing\Nenormous personal challenges.
Dialogue: 0,0:06:09.100,0:06:12.62,Default,,0000,0000,0000,,Many carers face higher costs\Nand can face financial difficulties,
Dialogue: 0,0:06:12.62,0:06:17.14,Default,,0000,0000,0000,,given the fact that they may not\Nbe able to work full-time
Dialogue: 0,0:06:17.14,0:06:20.63,Default,,0000,0000,0000,,or they may not be able\Nto hold down a job altogether.
Dialogue: 0,0:06:20.63,0:06:22.71,Default,,0000,0000,0000,,Many studies have shown\Nthat often carers sacrifice
Dialogue: 0,0:06:22.71,0:06:24.95,Default,,0000,0000,0000,,their own health and well-being
Dialogue: 0,0:06:24.95,0:06:27.73,Default,,0000,0000,0000,,in order to care for their loved ones.
Dialogue: 0,0:06:27.73,0:06:29.99,Default,,0000,0000,0000,,Many carers spend so much time\Ncaring for their loved ones
Dialogue: 0,0:06:29.99,0:06:35.12,Default,,0000,0000,0000,,that often their family\Nand their relationships can suffer.
Dialogue: 0,0:06:35.12,0:06:36.78,Default,,0000,0000,0000,,Many carers report that often
Dialogue: 0,0:06:36.78,0:06:41.38,Default,,0000,0000,0000,,their employers don't have adequate\Npolicies in place to support them.
Dialogue: 0,0:06:41.38,0:06:42.85,Default,,0000,0000,0000,,There has been improvement though
Dialogue: 0,0:06:42.85,0:06:45.97,Default,,0000,0000,0000,,in the recognition\Nof carers around the world.
Dialogue: 0,0:06:45.97,0:06:48.37,Default,,0000,0000,0000,,Just a few years ago,\Nan umbrella organization
Dialogue: 0,0:06:48.37,0:06:52.87,Default,,0000,0000,0000,,called the International Alliance\Nof Carer Organizations, or IACO,
Dialogue: 0,0:06:52.87,0:06:56.52,Default,,0000,0000,0000,,was formed to bring together\Ncarer groups from all over the world,
Dialogue: 0,0:06:56.52,0:06:58.66,Default,,0000,0000,0000,,to provide strategic direction,
Dialogue: 0,0:06:58.66,0:07:00.70,Default,,0000,0000,0000,,facilitate information sharing,
Dialogue: 0,0:07:00.70,0:07:05.19,Default,,0000,0000,0000,,as well as actively advocate\Nfor carers on an international level.
Dialogue: 0,0:07:05.19,0:07:10.04,Default,,0000,0000,0000,,Private entities are also starting\Nto recognize the situation of carers.
Dialogue: 0,0:07:10.04,0:07:12.33,Default,,0000,0000,0000,,I am proud that my personal engagement
Dialogue: 0,0:07:12.33,0:07:14.79,Default,,0000,0000,0000,,and enthusiasm towards\Nthis topic of carers
Dialogue: 0,0:07:14.79,0:07:17.78,Default,,0000,0000,0000,,found an echo in my own workplace.
Dialogue: 0,0:07:17.78,0:07:20.38,Default,,0000,0000,0000,,My company is committed to this cause,
Dialogue: 0,0:07:20.38,0:07:23.81,Default,,0000,0000,0000,,and has developed\Nan unprecedented framework
Dialogue: 0,0:07:23.81,0:07:26.72,Default,,0000,0000,0000,,for its employees and society as a whole.
Dialogue: 0,0:07:26.72,0:07:29.17,Default,,0000,0000,0000,,The objective is to empower carers
Dialogue: 0,0:07:29.17,0:07:31.58,Default,,0000,0000,0000,,to improve their own health and wellbeing
Dialogue: 0,0:07:31.58,0:07:35.02,Default,,0000,0000,0000,,and bring about a greater\Nbalance to their lives.
Dialogue: 0,0:07:35.02,0:07:38.35,Default,,0000,0000,0000,,Nevertheless, much more needs to be done
Dialogue: 0,0:07:38.35,0:07:42.26,Default,,0000,0000,0000,,to complement these relatively\Nisolated initiatives.
Dialogue: 0,0:07:42.26,0:07:45.44,Default,,0000,0000,0000,,Our societies are facing\Nincrease health pressures,
Dialogue: 0,0:07:45.44,0:07:47.53,Default,,0000,0000,0000,,including aging populations,
Dialogue: 0,0:07:47.53,0:07:50.96,Default,,0000,0000,0000,,increased incident of cancer\Nand chronic conditions,
Dialogue: 0,0:07:50.96,0:07:53.26,Default,,0000,0000,0000,,widespread inequality,
Dialogue: 0,0:07:53.26,0:07:55.28,Default,,0000,0000,0000,,amongst many others.
Dialogue: 0,0:07:55.28,0:07:57.11,Default,,0000,0000,0000,,to confront these challenges,
Dialogue: 0,0:07:57.11,0:08:00.91,Default,,0000,0000,0000,,policymakers must look beyond\Ntraditional healthcare pathways
Dialogue: 0,0:08:00.91,0:08:02.67,Default,,0000,0000,0000,,and employment policies
Dialogue: 0,0:08:02.67,0:08:05.14,Default,,0000,0000,0000,,and recognize that informal care
Dialogue: 0,0:08:05.14,0:08:08.91,Default,,0000,0000,0000,,will continue to form the bedrock of care.
Dialogue: 0,0:08:08.91,0:08:12.38,Default,,0000,0000,0000,,Caring for someone should be a choice,
Dialogue: 0,0:08:12.38,0:08:19.48,Default,,0000,0000,0000,,and should be done without putting\None's own wellbeing in the balance.
Dialogue: 0,0:08:19.48,0:08:24.02,Default,,0000,0000,0000,,But to really put the care\Nback into the healthcare,
Dialogue: 0,0:08:24.02,0:08:30.12,Default,,0000,0000,0000,,what's needed is a deep,\Nsocietal, structural change,
Dialogue: 0,0:08:30.12,0:08:33.60,Default,,0000,0000,0000,,and this can only happen\Nthrough a change in mindset.
Dialogue: 0,0:08:33.60,0:08:36.32,Default,,0000,0000,0000,,And this can start today.
Dialogue: 0,0:08:36.32,0:08:39.48,Default,,0000,0000,0000,,Today, we can plant the seed for a change
Dialogue: 0,0:08:39.48,0:08:42.32,Default,,0000,0000,0000,,for millions of carers around the world.
Dialogue: 0,0:08:42.32,0:08:44.44,Default,,0000,0000,0000,,Here's what I want to suggest:
Dialogue: 0,0:08:44.44,0:08:46.32,Default,,0000,0000,0000,,when you go home today,
Dialogue: 0,0:08:46.32,0:08:48.93,Default,,0000,0000,0000,,or to the office tomorrow morning,
Dialogue: 0,0:08:48.93,0:08:51.09,Default,,0000,0000,0000,,embrace a carer.
Dialogue: 0,0:08:51.09,0:08:53.11,Default,,0000,0000,0000,,Thank them,
Dialogue: 0,0:08:53.11,0:08:55.61,Default,,0000,0000,0000,,offer him or her a bit of help,
Dialogue: 0,0:08:55.61,0:09:00.90,Default,,0000,0000,0000,,maybe even volunteer as a carer yourself\Nfor a couple hours a week.
Dialogue: 0,0:09:00.90,0:09:03.21,Default,,0000,0000,0000,,If carers around the world\Nfelt better-recognized,
Dialogue: 0,0:09:03.21,0:09:05.92,Default,,0000,0000,0000,,it would not only improve\Ntheir own health and wellbeing
Dialogue: 0,0:09:05.92,0:09:07.69,Default,,0000,0000,0000,,and sense of fulfillment,
Dialogue: 0,0:09:07.69,0:09:11.87,Default,,0000,0000,0000,,but it would also improve the lives\Nof those that they're caring for.
Dialogue: 0,0:09:11.87,0:09:13.61,Default,,0000,0000,0000,,Let's care more.
Dialogue: 0,0:09:13.61,0:09:15.06,Default,,0000,0000,0000,,Thank you.
Dialogue: 0,0:09:15.06,0:09:17.74,Default,,0000,0000,0000,,(Applause)