[Script Info]
Title: 
[Events]
Format: Layer, Start, End, Style, Name, MarginL, MarginR, MarginV, Effect, Text
Dialogue: 0,0:00:00.95,0:00:04.10,Default,,0000,0000,0000,,Let's put the care back into health care.
Dialogue: 0,0:00:04.69,0:00:08.51,Default,,0000,0000,0000,,I've been working in the healthcare sector\Nfor the last 15 years,
Dialogue: 0,0:00:08.54,0:00:10.91,Default,,0000,0000,0000,,and one of the things\Nthat drew me to this sector
Dialogue: 0,0:00:10.94,0:00:15.15,Default,,0000,0000,0000,,was my interest in the care component\Nof our healthcare systems --
Dialogue: 0,0:00:15.18,0:00:16.52,Default,,0000,0000,0000,,more specifically,
Dialogue: 0,0:00:16.54,0:00:19.15,Default,,0000,0000,0000,,to the invaluable role played by carers.
Dialogue: 0,0:00:20.17,0:00:23.84,Default,,0000,0000,0000,,Now, how many of you in this room\Nconsider yourself a carer?
Dialogue: 0,0:00:26.47,0:00:29.07,Default,,0000,0000,0000,,By this, I mean how many of you\Nhave cared for someone
Dialogue: 0,0:00:29.10,0:00:32.72,Default,,0000,0000,0000,,suffering from an illness,\Ninjury or disability?
Dialogue: 0,0:00:32.75,0:00:34.87,Default,,0000,0000,0000,,Can you raise your hand\Nif this is the case?
Dialogue: 0,0:00:37.12,0:00:38.53,Default,,0000,0000,0000,,About half of the room.
Dialogue: 0,0:00:39.32,0:00:41.63,Default,,0000,0000,0000,,I want to thank all of you\Nwho raised your hands
Dialogue: 0,0:00:41.65,0:00:43.81,Default,,0000,0000,0000,,for the time that you've spent as a carer.
Dialogue: 0,0:00:43.84,0:00:46.48,Default,,0000,0000,0000,,What you do is extremely precious.
Dialogue: 0,0:00:47.81,0:00:50.20,Default,,0000,0000,0000,,I am a former cared-for patient myself.
Dialogue: 0,0:00:50.87,0:00:53.96,Default,,0000,0000,0000,,When I was a teenager,\NI suffered from Lyme disease
Dialogue: 0,0:00:53.98,0:00:57.07,Default,,0000,0000,0000,,and underwent 18 months\Nof antibiotic treatment.
Dialogue: 0,0:00:58.02,0:01:00.05,Default,,0000,0000,0000,,I was repeatedly misdiagnosed:
Dialogue: 0,0:01:00.52,0:01:04.96,Default,,0000,0000,0000,,bacterial meningitis,\Nfibromyalgia, you name it.
Dialogue: 0,0:01:04.99,0:01:06.55,Default,,0000,0000,0000,,They couldn't figure it out.
Dialogue: 0,0:01:07.14,0:01:10.61,Default,,0000,0000,0000,,And if I'm standing here\Nin front of you today,
Dialogue: 0,0:01:10.63,0:01:12.26,Default,,0000,0000,0000,,it's because I owe my life
Dialogue: 0,0:01:12.28,0:01:15.20,Default,,0000,0000,0000,,to the stubbornness\Nand commitment of one carer.
Dialogue: 0,0:01:16.19,0:01:18.16,Default,,0000,0000,0000,,He did everything he could for me --
Dialogue: 0,0:01:18.18,0:01:21.65,Default,,0000,0000,0000,,driving long distances\Nfrom one treatment center to another,
Dialogue: 0,0:01:21.68,0:01:23.55,Default,,0000,0000,0000,,searching for the best option,
Dialogue: 0,0:01:24.28,0:01:27.01,Default,,0000,0000,0000,,and above all, never giving up,
Dialogue: 0,0:01:27.03,0:01:29.02,Default,,0000,0000,0000,,despite the difficulties he encountered,
Dialogue: 0,0:01:29.04,0:01:32.21,Default,,0000,0000,0000,,including from a work\Nand quality-of-life perspective.
Dialogue: 0,0:01:32.87,0:01:34.60,Default,,0000,0000,0000,,That was my father.
Dialogue: 0,0:01:34.63,0:01:38.80,Default,,0000,0000,0000,,I recovered, and this is largely\Nthanks to his dedication.
Dialogue: 0,0:01:39.63,0:01:42.81,Default,,0000,0000,0000,,This experience turned me\Ninto a patient advocate.
Dialogue: 0,0:01:43.48,0:01:48.26,Default,,0000,0000,0000,,The closer I looked, the more I saw\Ncarers providing the same kind of support
Dialogue: 0,0:01:48.28,0:01:50.59,Default,,0000,0000,0000,,that my father provided to me,
Dialogue: 0,0:01:50.62,0:01:53.99,Default,,0000,0000,0000,,and playing a crucial role\Nin the healthcare system.
Dialogue: 0,0:01:54.69,0:01:57.31,Default,,0000,0000,0000,,I don't think it's an exaggeration to say
Dialogue: 0,0:01:57.33,0:01:59.81,Default,,0000,0000,0000,,that without informal carers like him,
Dialogue: 0,0:01:59.84,0:02:02.03,Default,,0000,0000,0000,,our health and social systems
Dialogue: 0,0:02:02.05,0:02:03.37,Default,,0000,0000,0000,,would crumble.
Dialogue: 0,0:02:04.15,0:02:07.51,Default,,0000,0000,0000,,And yet, they're largely\Ngoing unrecognized.
Dialogue: 0,0:02:08.83,0:02:11.93,Default,,0000,0000,0000,,I am now a long-distance\Ncarer for my mother,
Dialogue: 0,0:02:12.69,0:02:14.97,Default,,0000,0000,0000,,who suffers from multiple\Nchronic conditions.
Dialogue: 0,0:02:16.00,0:02:19.79,Default,,0000,0000,0000,,I understand, now more than ever,
Dialogue: 0,0:02:19.81,0:02:21.89,Default,,0000,0000,0000,,the demands that caregivers face.
Dialogue: 0,0:02:22.94,0:02:25.13,Default,,0000,0000,0000,,With aging populations,
Dialogue: 0,0:02:25.15,0:02:26.98,Default,,0000,0000,0000,,economic instability,
Dialogue: 0,0:02:26.100,0:02:28.97,Default,,0000,0000,0000,,healthcare system stress
Dialogue: 0,0:02:28.100,0:02:31.93,Default,,0000,0000,0000,,and increased incidents\Nof long-term chronic care needs,
Dialogue: 0,0:02:32.69,0:02:35.41,Default,,0000,0000,0000,,the importance and demands\Non family caregivers
Dialogue: 0,0:02:35.43,0:02:36.76,Default,,0000,0000,0000,,are greater than ever.
Dialogue: 0,0:02:37.89,0:02:41.78,Default,,0000,0000,0000,,Carers all over the world\Nare sacrificing their own physical,
Dialogue: 0,0:02:41.80,0:02:44.59,Default,,0000,0000,0000,,financial and psychosocial well-being
Dialogue: 0,0:02:44.61,0:02:46.44,Default,,0000,0000,0000,,to provide care for their loved ones.
Dialogue: 0,0:02:47.56,0:02:49.96,Default,,0000,0000,0000,,Carers have their own limits and needs,
Dialogue: 0,0:02:49.98,0:02:52.37,Default,,0000,0000,0000,,and in absence of adequate support,
Dialogue: 0,0:02:52.40,0:02:54.75,Default,,0000,0000,0000,,many could be stretched\Nto the breaking point.
Dialogue: 0,0:02:55.86,0:02:59.45,Default,,0000,0000,0000,,Once seen as a personal\Nand private matter in family life,
Dialogue: 0,0:03:00.13,0:03:03.64,Default,,0000,0000,0000,,unpaid caregiving has formed\Nthe invisible backbone
Dialogue: 0,0:03:03.67,0:03:06.99,Default,,0000,0000,0000,,of our health and social systems\Nall over the world.
Dialogue: 0,0:03:08.47,0:03:10.86,Default,,0000,0000,0000,,Many of these carers\Nare even in this room,
Dialogue: 0,0:03:10.89,0:03:12.20,Default,,0000,0000,0000,,as we have just seen.
Dialogue: 0,0:03:13.03,0:03:15.64,Default,,0000,0000,0000,,Who are they, and how many are they?
Dialogue: 0,0:03:16.22,0:03:18.58,Default,,0000,0000,0000,,What are the challenges\Nthat they are facing?
Dialogue: 0,0:03:18.61,0:03:22.41,Default,,0000,0000,0000,,And, above all, how can we make sure\Nthat their value to patients,
Dialogue: 0,0:03:22.43,0:03:24.75,Default,,0000,0000,0000,,our healthcare system and society
Dialogue: 0,0:03:24.77,0:03:25.93,Default,,0000,0000,0000,,is recognized?
Dialogue: 0,0:03:27.07,0:03:29.65,Default,,0000,0000,0000,,Anyone can be a carer, really:
Dialogue: 0,0:03:30.36,0:03:34.23,Default,,0000,0000,0000,,a 15-year-old girl caring\Nfor a parent with multiple sclerosis;
Dialogue: 0,0:03:35.07,0:03:37.98,Default,,0000,0000,0000,,a 40-year-old man juggling full-time work
Dialogue: 0,0:03:38.00,0:03:40.94,Default,,0000,0000,0000,,while caring for his family\Nwho lives far away;
Dialogue: 0,0:03:41.62,0:03:45.31,Default,,0000,0000,0000,,a 60-year-old man caring for his wife\Nwho has terminal cancer;
Dialogue: 0,0:03:46.28,0:03:49.41,Default,,0000,0000,0000,,or an 80-year-old woman\Ncaring for her husband
Dialogue: 0,0:03:49.44,0:03:51.07,Default,,0000,0000,0000,,who has Alzheimer's disease.
Dialogue: 0,0:03:51.100,0:03:55.89,Default,,0000,0000,0000,,The things carers do\Nfor their patients are varied.
Dialogue: 0,0:03:55.91,0:03:57.61,Default,,0000,0000,0000,,They provide personal care,
Dialogue: 0,0:03:57.63,0:03:59.64,Default,,0000,0000,0000,,like getting someone dressed,
Dialogue: 0,0:03:59.66,0:04:01.21,Default,,0000,0000,0000,,feeding them,
Dialogue: 0,0:04:01.23,0:04:02.66,Default,,0000,0000,0000,,helping them to the bathroom,
Dialogue: 0,0:04:03.26,0:04:04.68,Default,,0000,0000,0000,,helping them move about.
Dialogue: 0,0:04:05.36,0:04:08.97,Default,,0000,0000,0000,,They also provide a significant\Nlevel of medical care,
Dialogue: 0,0:04:08.99,0:04:13.94,Default,,0000,0000,0000,,because they often know a lot about\Ntheir loved one's condition and needs,
Dialogue: 0,0:04:13.96,0:04:16.85,Default,,0000,0000,0000,,sometimes better\Nthan the patients themselves,
Dialogue: 0,0:04:16.88,0:04:20.45,Default,,0000,0000,0000,,who may be paralyzed\Nor confused by their diagnosis.
Dialogue: 0,0:04:21.28,0:04:22.83,Default,,0000,0000,0000,,In those situations,
Dialogue: 0,0:04:23.35,0:04:27.03,Default,,0000,0000,0000,,carers are also advocates for the patient.
Dialogue: 0,0:04:28.77,0:04:30.97,Default,,0000,0000,0000,,Also of critical importance
Dialogue: 0,0:04:31.63,0:04:35.73,Default,,0000,0000,0000,,is the fact that carers\Nalso provide emotional support.
Dialogue: 0,0:04:36.34,0:04:38.31,Default,,0000,0000,0000,,They organize doctor's appointments,
Dialogue: 0,0:04:39.11,0:04:40.83,Default,,0000,0000,0000,,they manage finances,
Dialogue: 0,0:04:40.86,0:04:44.11,Default,,0000,0000,0000,,and they also deal\Nwith daily household tasks.
Dialogue: 0,0:04:45.02,0:04:47.83,Default,,0000,0000,0000,,These challenges are challenges\Nthat we can't ignore.
Dialogue: 0,0:04:48.63,0:04:52.08,Default,,0000,0000,0000,,There are currently\Nmore than 100 million carers
Dialogue: 0,0:04:52.10,0:04:55.87,Default,,0000,0000,0000,,providing 80 percent\Nof care across Europe.
Dialogue: 0,0:04:56.62,0:04:58.93,Default,,0000,0000,0000,,And even if these numbers are impressive,
Dialogue: 0,0:04:58.95,0:05:03.39,Default,,0000,0000,0000,,they're most likely underestimated,\Ngiven the lack of recognition of carers.
Dialogue: 0,0:05:03.41,0:05:04.71,Default,,0000,0000,0000,,As we have just seen,
Dialogue: 0,0:05:04.73,0:05:08.12,Default,,0000,0000,0000,,many of you in this room weren't sure\Nif you could be qualified
Dialogue: 0,0:05:08.14,0:05:10.22,Default,,0000,0000,0000,,or considered to be a carer.
Dialogue: 0,0:05:10.25,0:05:12.86,Default,,0000,0000,0000,,Many of you probably thought\NI was referring to a nurse
Dialogue: 0,0:05:12.88,0:05:14.80,Default,,0000,0000,0000,,or some other healthcare professional.
Dialogue: 0,0:05:15.60,0:05:17.10,Default,,0000,0000,0000,,Also stunning
Dialogue: 0,0:05:17.12,0:05:20.84,Default,,0000,0000,0000,,are the benefits that carers\Nbring to our societies.
Dialogue: 0,0:05:20.86,0:05:24.77,Default,,0000,0000,0000,,I want to give you just one example\Nfrom Australia in 2015.
Dialogue: 0,0:05:25.61,0:05:28.96,Default,,0000,0000,0000,,The annual value\Nprovided by informal carers
Dialogue: 0,0:05:28.98,0:05:31.01,Default,,0000,0000,0000,,to those suffering from mental illness
Dialogue: 0,0:05:31.04,0:05:35.95,Default,,0000,0000,0000,,was evaluated at 13.2 billion\NAustralian dollars.
Dialogue: 0,0:05:36.43,0:05:39.97,Default,,0000,0000,0000,,This is nearly two times\Nwhat the Australian government spends
Dialogue: 0,0:05:39.100,0:05:41.96,Default,,0000,0000,0000,,on mental health services annually.
Dialogue: 0,0:05:41.98,0:05:44.21,Default,,0000,0000,0000,,These numbers, among others,
Dialogue: 0,0:05:44.23,0:05:47.39,Default,,0000,0000,0000,,demonstrate that if carers\Nwere to stop caring tomorrow,
Dialogue: 0,0:05:47.42,0:05:50.71,Default,,0000,0000,0000,,our health and social systems\Nwould crumble.
Dialogue: 0,0:05:52.17,0:05:54.93,Default,,0000,0000,0000,,And while the importance\Nof these millions of silent carers
Dialogue: 0,0:05:54.96,0:05:56.30,Default,,0000,0000,0000,,cannot be denied,
Dialogue: 0,0:05:56.89,0:05:58.94,Default,,0000,0000,0000,,they've largely been unnoticed
Dialogue: 0,0:05:58.96,0:06:01.92,Default,,0000,0000,0000,,by governments, healthcare systems
Dialogue: 0,0:06:01.94,0:06:03.38,Default,,0000,0000,0000,,and private entities.
Dialogue: 0,0:06:05.04,0:06:09.28,Default,,0000,0000,0000,,In addition, carers are facing\Nenormous personal challenges.
Dialogue: 0,0:06:09.79,0:06:13.79,Default,,0000,0000,0000,,Many carers face higher costs\Nand can face financial difficulties,
Dialogue: 0,0:06:13.82,0:06:16.90,Default,,0000,0000,0000,,given the fact that they may not\Nbe able to work full time
Dialogue: 0,0:06:16.92,0:06:19.62,Default,,0000,0000,0000,,or they may not be able\Nto hold down a job altogether.
Dialogue: 0,0:06:20.33,0:06:21.53,Default,,0000,0000,0000,,Many studies have shown
Dialogue: 0,0:06:21.55,0:06:24.55,Default,,0000,0000,0000,,that often carers sacrifice\Ntheir own health and well-being
Dialogue: 0,0:06:24.58,0:06:26.58,Default,,0000,0000,0000,,in order to care for their loved ones.
Dialogue: 0,0:06:27.40,0:06:31.05,Default,,0000,0000,0000,,Many carers spend so much time\Ncaring for their loved ones
Dialogue: 0,0:06:31.07,0:06:34.12,Default,,0000,0000,0000,,that often their family\Nand their relationships can suffer.
Dialogue: 0,0:06:34.94,0:06:36.63,Default,,0000,0000,0000,,Many carers report that often,
Dialogue: 0,0:06:36.65,0:06:39.36,Default,,0000,0000,0000,,their employers don't have\Nadequate policies in place
Dialogue: 0,0:06:39.38,0:06:40.66,Default,,0000,0000,0000,,to support them.
Dialogue: 0,0:06:41.16,0:06:42.85,Default,,0000,0000,0000,,There has been improvement, though,
Dialogue: 0,0:06:42.87,0:06:45.18,Default,,0000,0000,0000,,in the recognition\Nof carers around the world.
Dialogue: 0,0:06:45.72,0:06:48.26,Default,,0000,0000,0000,,Just a few years ago,\Nan umbrella organization
Dialogue: 0,0:06:48.29,0:06:52.61,Default,,0000,0000,0000,,called the International Alliance\Nof Carer Organizations, or IACO,
Dialogue: 0,0:06:52.63,0:06:56.50,Default,,0000,0000,0000,,was formed to bring together\Ncarer groups from all over the world,
Dialogue: 0,0:06:56.52,0:06:58.63,Default,,0000,0000,0000,,to provide strategic direction,
Dialogue: 0,0:06:58.66,0:07:00.68,Default,,0000,0000,0000,,facilitate information sharing,
Dialogue: 0,0:07:00.70,0:07:04.27,Default,,0000,0000,0000,,as well as actively advocate\Nfor carers on an international level.
Dialogue: 0,0:07:05.04,0:07:09.35,Default,,0000,0000,0000,,Private entities are also starting\Nto recognize the situation of carers.
Dialogue: 0,0:07:09.84,0:07:12.10,Default,,0000,0000,0000,,I am proud that my personal engagement
Dialogue: 0,0:07:12.12,0:07:14.75,Default,,0000,0000,0000,,and enthusiasm towards\Nthis topic of carers
Dialogue: 0,0:07:14.78,0:07:16.87,Default,,0000,0000,0000,,found an echo in my own workplace.
Dialogue: 0,0:07:17.61,0:07:20.11,Default,,0000,0000,0000,,My company is committed to this cause
Dialogue: 0,0:07:20.13,0:07:22.88,Default,,0000,0000,0000,,and has developed\Nan unprecedented framework
Dialogue: 0,0:07:22.91,0:07:25.79,Default,,0000,0000,0000,,for its employees and society as a whole.
Dialogue: 0,0:07:26.47,0:07:28.90,Default,,0000,0000,0000,,The objective is to empower carers
Dialogue: 0,0:07:28.92,0:07:31.09,Default,,0000,0000,0000,,to improve their own health and well-being
Dialogue: 0,0:07:31.11,0:07:33.70,Default,,0000,0000,0000,,and bring about a greater\Nbalance to their lives.
Dialogue: 0,0:07:34.88,0:07:38.18,Default,,0000,0000,0000,,Nevertheless, much more needs to be done
Dialogue: 0,0:07:38.20,0:07:41.10,Default,,0000,0000,0000,,to complement these relatively\Nisolated initiatives.
Dialogue: 0,0:07:42.00,0:07:44.91,Default,,0000,0000,0000,,Our societies are facing\Nincreased health pressures,
Dialogue: 0,0:07:44.94,0:07:47.22,Default,,0000,0000,0000,,including aging populations,
Dialogue: 0,0:07:47.25,0:07:50.65,Default,,0000,0000,0000,,increased incidence of cancer\Nand chronic conditions,
Dialogue: 0,0:07:50.68,0:07:52.71,Default,,0000,0000,0000,,widespread inequality,
Dialogue: 0,0:07:52.74,0:07:54.20,Default,,0000,0000,0000,,amongst many others.
Dialogue: 0,0:07:54.86,0:07:56.73,Default,,0000,0000,0000,,To confront these challenges,
Dialogue: 0,0:07:56.75,0:08:00.41,Default,,0000,0000,0000,,policymakers must look beyond\Ntraditional healthcare pathways
Dialogue: 0,0:08:00.43,0:08:01.78,Default,,0000,0000,0000,,and employment policies
Dialogue: 0,0:08:02.42,0:08:04.77,Default,,0000,0000,0000,,and recognize that informal care
Dialogue: 0,0:08:04.80,0:08:07.86,Default,,0000,0000,0000,,will continue to form the bedrock of care.
Dialogue: 0,0:08:09.46,0:08:11.76,Default,,0000,0000,0000,,Caring for someone should be a choice
Dialogue: 0,0:08:12.64,0:08:16.76,Default,,0000,0000,0000,,and should be done without putting\None's own well-being in the balance.
Dialogue: 0,0:08:19.13,0:08:22.96,Default,,0000,0000,0000,,But to really put the care\Nback into health care,
Dialogue: 0,0:08:23.67,0:08:29.12,Default,,0000,0000,0000,,what's needed is a deep,\Nsocietal, structural change.
Dialogue: 0,0:08:30.01,0:08:32.68,Default,,0000,0000,0000,,And this can only happen\Nthrough a change in mindset.
Dialogue: 0,0:08:33.37,0:08:35.19,Default,,0000,0000,0000,,And this can start today.
Dialogue: 0,0:08:36.18,0:08:39.07,Default,,0000,0000,0000,,Today, we can plant the seed for a change
Dialogue: 0,0:08:39.09,0:08:41.21,Default,,0000,0000,0000,,for millions of carers around the world.
Dialogue: 0,0:08:41.93,0:08:43.50,Default,,0000,0000,0000,,Here's what I want to suggest:
Dialogue: 0,0:08:44.22,0:08:45.62,Default,,0000,0000,0000,,when you go home today
Dialogue: 0,0:08:46.32,0:08:48.64,Default,,0000,0000,0000,,or to the office tomorrow morning,
Dialogue: 0,0:08:48.67,0:08:49.96,Default,,0000,0000,0000,,embrace a carer.
Dialogue: 0,0:08:51.01,0:08:52.22,Default,,0000,0000,0000,,Thank them,
Dialogue: 0,0:08:52.76,0:08:54.59,Default,,0000,0000,0000,,offer him or her a bit of help,
Dialogue: 0,0:08:55.28,0:08:59.24,Default,,0000,0000,0000,,maybe even volunteer as a carer yourself\Nfor a couple hours a week.
Dialogue: 0,0:09:00.26,0:09:02.91,Default,,0000,0000,0000,,If carers around the world\Nfelt better recognized,
Dialogue: 0,0:09:02.94,0:09:05.74,Default,,0000,0000,0000,,it would not only improve\Ntheir own health and well-being
Dialogue: 0,0:09:05.77,0:09:07.48,Default,,0000,0000,0000,,and sense of fulfillment,
Dialogue: 0,0:09:07.50,0:09:10.89,Default,,0000,0000,0000,,but it would also improve the lives\Nof those that they're caring for.
Dialogue: 0,0:09:11.53,0:09:13.00,Default,,0000,0000,0000,,Let's care more.
Dialogue: 0,0:09:13.48,0:09:14.64,Default,,0000,0000,0000,,Thank you.
Dialogue: 0,0:09:14.66,0:09:17.68,Default,,0000,0000,0000,,(Applause)