[Script Info] Title: [Events] Format: Layer, Start, End, Style, Name, MarginL, MarginR, MarginV, Effect, Text Dialogue: 0,0:00:06.67,0:00:08.41,Default,,0000,0000,0000,,When I turned 17, Dialogue: 0,0:00:08.41,0:00:12.36,Default,,0000,0000,0000,,I went to the doctor because things\Nweren't developing normally. Dialogue: 0,0:00:12.36,0:00:16.57,Default,,0000,0000,0000,,I still hadn't started my period.\NI still didn't have boobs. Dialogue: 0,0:00:16.57,0:00:18.64,Default,,0000,0000,0000,,I was referred up \Nthe chain of specialists, Dialogue: 0,0:00:18.64,0:00:21.58,Default,,0000,0000,0000,,and we set out to find\Nwhat was wrong with me. Dialogue: 0,0:00:21.58,0:00:24.18,Default,,0000,0000,0000,,This was the first time,\Nin a medical setting, Dialogue: 0,0:00:24.18,0:00:27.42,Default,,0000,0000,0000,,that I felt like a thing to be fixed. Dialogue: 0,0:00:29.47,0:00:35.03,Default,,0000,0000,0000,,The doctors ordered some tests,\Nand when they got the results back, Dialogue: 0,0:00:35.03,0:00:38.88,Default,,0000,0000,0000,,they said, "Well, we didn't expect that!", Dialogue: 0,0:00:39.53,0:00:41.85,Default,,0000,0000,0000,,which I think is very next to "oops" Dialogue: 0,0:00:41.85,0:00:45.73,Default,,0000,0000,0000,,on the list of things you don't want\Nto hear in the doctor's office. Dialogue: 0,0:00:45.73,0:00:47.73,Default,,0000,0000,0000,,(Laughter) Dialogue: 0,0:00:47.73,0:00:50.26,Default,,0000,0000,0000,,A quick biology refresher for you: Dialogue: 0,0:00:50.26,0:00:55.63,Default,,0000,0000,0000,,women have two X chromosomes\Nand men have an X and a Y, right? Dialogue: 0,0:00:55.63,0:00:58.06,Default,,0000,0000,0000,,Well, usually. Dialogue: 0,0:00:58.68,0:01:02.16,Default,,0000,0000,0000,,The doctors were confused because,\Nwhen my chromosome analysis came back, Dialogue: 0,0:01:02.16,0:01:04.50,Default,,0000,0000,0000,,I had an X and a Y, Dialogue: 0,0:01:04.50,0:01:07.50,Default,,0000,0000,0000,,which is typically associated\Nwith being male. Dialogue: 0,0:01:08.03,0:01:12.65,Default,,0000,0000,0000,,I was intersex,\Nsomewhere between the sexes. Dialogue: 0,0:01:14.13,0:01:18.00,Default,,0000,0000,0000,,Intersex people have some combination\Nof both male and female, Dialogue: 0,0:01:18.00,0:01:23.67,Default,,0000,0000,0000,,whether that's in their external anatomy,\Ntheir internal reproductive organs, Dialogue: 0,0:01:24.31,0:01:27.28,Default,,0000,0000,0000,,their hormone levels, or their DNA. Dialogue: 0,0:01:27.76,0:01:29.50,Default,,0000,0000,0000,,Intersex also includes people Dialogue: 0,0:01:29.50,0:01:34.02,Default,,0000,0000,0000,,who don't have any particular aspect\Nof the opposite sex, Dialogue: 0,0:01:34.02,0:01:39.35,Default,,0000,0000,0000,,but their anatomy just isn't quite typical\Nfor what you would expect. Dialogue: 0,0:01:39.35,0:01:42.94,Default,,0000,0000,0000,,Being intersex is not the same\Nas being transgender. Dialogue: 0,0:01:42.94,0:01:48.76,Default,,0000,0000,0000,,Transgender people typically have bodies\Nthat correspond entirely to one sex. Dialogue: 0,0:01:48.76,0:01:52.55,Default,,0000,0000,0000,,While it is possible to be\Nboth intersex and transgender, Dialogue: 0,0:01:52.55,0:01:56.01,Default,,0000,0000,0000,,the majority of each group\Nis either one or the other. Dialogue: 0,0:01:56.47,0:01:59.42,Default,,0000,0000,0000,,People find out that they're\Nintersex in a few ways. Dialogue: 0,0:02:00.49,0:02:01.92,Default,,0000,0000,0000,,Some people find out - Dialogue: 0,0:02:01.92,0:02:05.08,Default,,0000,0000,0000,,well, their parents and their doctors\Nfind out when they're babies, Dialogue: 0,0:02:05.08,0:02:08.72,Default,,0000,0000,0000,,and they notice that their anatomy\Njust isn't quite typical. Dialogue: 0,0:02:08.72,0:02:10.55,Default,,0000,0000,0000,,Other people find out during puberty, Dialogue: 0,0:02:10.55,0:02:13.31,Default,,0000,0000,0000,,when puberty goes in ways\Nthat they didn't expect, Dialogue: 0,0:02:13.31,0:02:17.09,Default,,0000,0000,0000,,or, as in my case, when puberty\Njust doesn't happen at all. Dialogue: 0,0:02:17.09,0:02:21.61,Default,,0000,0000,0000,,So, once we knew "what was wrong with me," Dialogue: 0,0:02:21.61,0:02:24.61,Default,,0000,0000,0000,,it became a thing to be fixed. Dialogue: 0,0:02:24.61,0:02:26.57,Default,,0000,0000,0000,,We had our game plan. Dialogue: 0,0:02:26.57,0:02:30.58,Default,,0000,0000,0000,,I had streak gonads,\Ntiny little streaks of tissue Dialogue: 0,0:02:30.58,0:02:33.41,Default,,0000,0000,0000,,that would normally have developed\Ninto ovaries in women Dialogue: 0,0:02:33.41,0:02:37.85,Default,,0000,0000,0000,,or testes in men, but in me,\Nnever developed into anything. Dialogue: 0,0:02:37.85,0:02:40.20,Default,,0000,0000,0000,,Those might be cancerous, Dialogue: 0,0:02:40.20,0:02:44.17,Default,,0000,0000,0000,,so I would have to have\Nsurgery to remove them. Dialogue: 0,0:02:45.05,0:02:47.81,Default,,0000,0000,0000,,If they were cancerous\Nand the cancer had spread, Dialogue: 0,0:02:47.81,0:02:51.36,Default,,0000,0000,0000,,then I might need more surgery,\Nand maybe chemo, Dialogue: 0,0:02:51.36,0:02:53.47,Default,,0000,0000,0000,,and maybe an oncology team. Dialogue: 0,0:02:53.85,0:02:57.20,Default,,0000,0000,0000,,During surgery, we would also evaluate\Nwhat female anatomy I had Dialogue: 0,0:02:57.20,0:02:59.18,Default,,0000,0000,0000,,and whether it was all hooked up. Dialogue: 0,0:02:59.18,0:03:03.05,Default,,0000,0000,0000,,If I had a uterus, we needed to know\Nthat it wasn't often its own little world, Dialogue: 0,0:03:03.05,0:03:06.62,Default,,0000,0000,0000,,because hormone replacement therapy\Ncould stimulate a period Dialogue: 0,0:03:06.62,0:03:09.14,Default,,0000,0000,0000,,and the blood would have nowhere to go. Dialogue: 0,0:03:09.14,0:03:13.05,Default,,0000,0000,0000,,At the end of the day,\Na few prognoses were tossed out. Dialogue: 0,0:03:13.05,0:03:15.04,Default,,0000,0000,0000,,I would probably never be pregnant. Dialogue: 0,0:03:15.04,0:03:17.36,Default,,0000,0000,0000,,I might never have a normal sex life. Dialogue: 0,0:03:17.36,0:03:19.87,Default,,0000,0000,0000,,And by the time all\Nof the diagnostics were done, Dialogue: 0,0:03:19.87,0:03:21.74,Default,,0000,0000,0000,,I would be 18. Dialogue: 0,0:03:21.74,0:03:25.22,Default,,0000,0000,0000,,Now, I know that starting\Npuberty was really high Dialogue: 0,0:03:25.22,0:03:28.21,Default,,0000,0000,0000,,on everyone's list of things to do\Nwhen they turned 18 - Dialogue: 0,0:03:28.21,0:03:30.45,Default,,0000,0000,0000,,(Laughter) Dialogue: 0,0:03:31.58,0:03:35.16,Default,,0000,0000,0000,,but I'm happy to report\Nthat everything turned out well, Dialogue: 0,0:03:35.16,0:03:38.62,Default,,0000,0000,0000,,including my moderately\Nawkward freshman year of college. Dialogue: 0,0:03:38.62,0:03:40.15,Default,,0000,0000,0000,,(Laughter) Dialogue: 0,0:03:40.15,0:03:41.77,Default,,0000,0000,0000,,I didn't have cancer, Dialogue: 0,0:03:41.77,0:03:44.88,Default,,0000,0000,0000,,I can probably be pregnant\Nwith the help of an egg donor, Dialogue: 0,0:03:44.88,0:03:47.99,Default,,0000,0000,0000,,and my sex life is none of your business. Dialogue: 0,0:03:47.99,0:03:50.18,Default,,0000,0000,0000,,(Laughter) Dialogue: 0,0:03:50.18,0:03:53.10,Default,,0000,0000,0000,,(Cheers) (Applause) Dialogue: 0,0:03:56.36,0:03:59.82,Default,,0000,0000,0000,,Our game plan had gone perfectly. Dialogue: 0,0:04:00.28,0:04:04.18,Default,,0000,0000,0000,,According to any\Nmedical standard, I was fixed, Dialogue: 0,0:04:04.76,0:04:08.27,Default,,0000,0000,0000,,but fixing is different than healing, Dialogue: 0,0:04:08.69,0:04:11.81,Default,,0000,0000,0000,,and healing rarely comes with a road map. Dialogue: 0,0:04:12.96,0:04:15.88,Default,,0000,0000,0000,,I think it's indicative\Nof a fixing mentality Dialogue: 0,0:04:15.88,0:04:19.40,Default,,0000,0000,0000,,that I was never referred to counseling, Dialogue: 0,0:04:19.40,0:04:22.05,Default,,0000,0000,0000,,I was never referred to group counseling, Dialogue: 0,0:04:22.05,0:04:25.98,Default,,0000,0000,0000,,and it was never suggested\Nthat I could meet people like me. Dialogue: 0,0:04:27.14,0:04:31.35,Default,,0000,0000,0000,,Imagine being told at 17\Nthat you have red hair. Dialogue: 0,0:04:31.35,0:04:35.68,Default,,0000,0000,0000,,And you're like, \N"Red hair... what's that?" Dialogue: 0,0:04:36.20,0:04:38.84,Default,,0000,0000,0000,,That sounds ridiculous, Dialogue: 0,0:04:38.84,0:04:42.18,Default,,0000,0000,0000,,but at 1% to 2% \Nof the population worldwide, Dialogue: 0,0:04:42.18,0:04:45.79,Default,,0000,0000,0000,,being intersex is about as common\Nas having red hair. Dialogue: 0,0:04:46.35,0:04:50.02,Default,,0000,0000,0000,,In the United States,\Nit's also about as common as being Jewish. Dialogue: 0,0:04:51.15,0:04:53.59,Default,,0000,0000,0000,,So, where are we? Dialogue: 0,0:04:53.59,0:04:58.57,Default,,0000,0000,0000,,And how have so many people\Nnever heard of us? Dialogue: 0,0:04:58.57,0:05:03.72,Default,,0000,0000,0000,,It still astonishes me that, in several\Nyears of being out as an intersex person, Dialogue: 0,0:05:03.72,0:05:10.63,Default,,0000,0000,0000,,I have never met another intersex person\Nnaturally, on the street, in the wild - Dialogue: 0,0:05:10.63,0:05:12.94,Default,,0000,0000,0000,,(Laughter) Dialogue: 0,0:05:13.92,0:05:17.20,Default,,0000,0000,0000,,Even in the LGBT community,\Nnobody's ever said, Dialogue: 0,0:05:17.20,0:05:21.32,Default,,0000,0000,0000,,"Oh, yeah, me too!",\Nor "My sister is," "My friend is." Dialogue: 0,0:05:21.96,0:05:25.25,Default,,0000,0000,0000,,In our personal,\Nprofessional and public lives, Dialogue: 0,0:05:25.25,0:05:27.97,Default,,0000,0000,0000,,we are deep underground. Dialogue: 0,0:05:27.97,0:05:31.28,Default,,0000,0000,0000,,We've been ashamed of it,\Nso we don't talk about it. Dialogue: 0,0:05:31.28,0:05:35.08,Default,,0000,0000,0000,,So, we become ashamed of it,\Nand the cycle continues. Dialogue: 0,0:05:36.13,0:05:39.18,Default,,0000,0000,0000,,But we can't be invisible anymore. Dialogue: 0,0:05:39.73,0:05:43.83,Default,,0000,0000,0000,,We need to be seen and we need you\Nto know that we exist Dialogue: 0,0:05:43.83,0:05:46.99,Default,,0000,0000,0000,,because, otherwise,\Nthe next generation of intersex kids Dialogue: 0,0:05:46.99,0:05:50.88,Default,,0000,0000,0000,,is going to grow up just as confused\Nand ashamed as we did. Dialogue: 0,0:05:51.36,0:05:52.84,Default,,0000,0000,0000,,We need people to know Dialogue: 0,0:05:52.84,0:05:57.12,Default,,0000,0000,0000,,that, if intersex people are 1%\Nof every population, Dialogue: 0,0:05:57.12,0:06:01.68,Default,,0000,0000,0000,,then there may be five\Nintersex Fortune 500 CEOs, Dialogue: 0,0:06:01.68,0:06:04.78,Default,,0000,0000,0000,,there may be five\Nintersex members of Congress, Dialogue: 0,0:06:04.78,0:06:09.52,Default,,0000,0000,0000,,there may be three\Nintersex United States astronauts, Dialogue: 0,0:06:09.52,0:06:14.84,Default,,0000,0000,0000,,and there may be four intersex kids\Nin the average US elementary school. Dialogue: 0,0:06:15.34,0:06:18.35,Default,,0000,0000,0000,,We need to be seen\Nand we need everyone's voices Dialogue: 0,0:06:18.35,0:06:23.03,Default,,0000,0000,0000,,because the consequences\Nof us not being seen are dire. Dialogue: 0,0:06:23.81,0:06:26.48,Default,,0000,0000,0000,,Across the United States\Nand around the world, Dialogue: 0,0:06:26.48,0:06:32.11,Default,,0000,0000,0000,,intersex babies have been subjected\Nto what's been called genital mutilation. Dialogue: 0,0:06:32.96,0:06:37.09,Default,,0000,0000,0000,,I worry that that term\Nstigmatizes intersex people, Dialogue: 0,0:06:37.09,0:06:40.67,Default,,0000,0000,0000,,but I do think it can base\Nthe gravity of the situation. Dialogue: 0,0:06:41.71,0:06:45.70,Default,,0000,0000,0000,,Intersex babies are being subjected\Nto surgery that is cosmetic Dialogue: 0,0:06:45.70,0:06:47.35,Default,,0000,0000,0000,,and medically not necessary, Dialogue: 0,0:06:47.35,0:06:50.86,Default,,0000,0000,0000,,and is designed to make their genitals\Nappear more normal. Dialogue: 0,0:06:51.48,0:06:54.38,Default,,0000,0000,0000,,These surgeries carry risks of scarring, Dialogue: 0,0:06:54.38,0:06:58.33,Default,,0000,0000,0000,,loss of sensation,\Nand sexual difficulties later on. Dialogue: 0,0:06:59.90,0:07:03.40,Default,,0000,0000,0000,,What's really surprising\Nis that relatively minor abnormalities Dialogue: 0,0:07:03.40,0:07:05.94,Default,,0000,0000,0000,,can bring infants under the knife. Dialogue: 0,0:07:06.73,0:07:08.86,Default,,0000,0000,0000,,In a condition called hypospadias, Dialogue: 0,0:07:08.86,0:07:12.63,Default,,0000,0000,0000,,a boy's penis has an under opening,\Ninstead of a tip opening. Dialogue: 0,0:07:12.63,0:07:15.08,Default,,0000,0000,0000,,The term comes from the Greek\N"hypo" for "under," Dialogue: 0,0:07:15.08,0:07:17.46,Default,,0000,0000,0000,,and "spadia" for "opening." Dialogue: 0,0:07:18.37,0:07:19.81,Default,,0000,0000,0000,,Instead of being at the tip, Dialogue: 0,0:07:19.81,0:07:22.25,Default,,0000,0000,0000,,the urethra is on the\Nunderside of the penis, Dialogue: 0,0:07:22.25,0:07:24.06,Default,,0000,0000,0000,,somewhere lower down. Dialogue: 0,0:07:24.57,0:07:26.72,Default,,0000,0000,0000,,These boys generally have\Na functioning penis, Dialogue: 0,0:07:26.72,0:07:29.55,Default,,0000,0000,0000,,so why are they being \Nsubjected to surgery? Dialogue: 0,0:07:29.55,0:07:35.42,Default,,0000,0000,0000,,Well, so that, when they are older,\Nthey can stand while peeing; Dialogue: 0,0:07:35.93,0:07:37.90,Default,,0000,0000,0000,,so that their penis doesn't look weird. Dialogue: 0,0:07:37.90,0:07:41.55,Default,,0000,0000,0000,,Imagine a set of parents\Nseeing their new baby and saying, Dialogue: 0,0:07:41.55,0:07:43.93,Default,,0000,0000,0000,,"Those ears have got to go." Dialogue: 0,0:07:44.87,0:07:48.56,Default,,0000,0000,0000,,The doctors would look at them\Nlike they were nuts, Dialogue: 0,0:07:48.56,0:07:51.72,Default,,0000,0000,0000,,but, for some reason, when\Nthe abnormality is in a baby's genitals, Dialogue: 0,0:07:51.72,0:07:54.33,Default,,0000,0000,0000,,surgery seems like the only option. Dialogue: 0,0:07:55.29,0:08:00.27,Default,,0000,0000,0000,,Hypospadia affects 1 in 200 boys,\Nwhich makes it relatively common. Dialogue: 0,0:08:00.27,0:08:04.31,Default,,0000,0000,0000,,Even so, we don't have good data\Non the number of procedures performed. Dialogue: 0,0:08:04.31,0:08:05.85,Default,,0000,0000,0000,,We also don't have good data Dialogue: 0,0:08:05.85,0:08:09.00,Default,,0000,0000,0000,,on the success or failure rates\Nof these surgeries. Dialogue: 0,0:08:09.00,0:08:14.12,Default,,0000,0000,0000,,Failure rates seem to range\Nbetween 4% and 67%, Dialogue: 0,0:08:14.12,0:08:17.12,Default,,0000,0000,0000,,depending on the type\Nof procedure performed Dialogue: 0,0:08:17.12,0:08:19.87,Default,,0000,0000,0000,,and the type of surgeon\Nperforming the surgery. Dialogue: 0,0:08:20.40,0:08:22.58,Default,,0000,0000,0000,,That's a huge range. Dialogue: 0,0:08:23.24,0:08:28.39,Default,,0000,0000,0000,,I would argue that any risk is too great\Nwhen the procedure is purely cosmetic Dialogue: 0,0:08:28.39,0:08:32.30,Default,,0000,0000,0000,,and the child is too young to participate\Nin the decision-making, Dialogue: 0,0:08:32.30,0:08:35.58,Default,,0000,0000,0000,,especially because failure\Nmeans more surgery. Dialogue: 0,0:08:35.58,0:08:39.04,Default,,0000,0000,0000,,Kids have ended up\Nhaving 10, 20, 25 surgeries Dialogue: 0,0:08:39.04,0:08:41.11,Default,,0000,0000,0000,,to correct what went wrong \Nin the first one Dialogue: 0,0:08:41.11,0:08:43.44,Default,,0000,0000,0000,,and in subsequent surgeries. Dialogue: 0,0:08:44.86,0:08:48.35,Default,,0000,0000,0000,,They've ended up spending spring break\Nand summer at home, recuperating, Dialogue: 0,0:08:48.35,0:08:50.79,Default,,0000,0000,0000,,instead of having fun with their friends. Dialogue: 0,0:08:51.51,0:08:53.36,Default,,0000,0000,0000,,And for what? Dialogue: 0,0:08:54.63,0:08:57.88,Default,,0000,0000,0000,,I honestly believe\Nthat parents and physicians Dialogue: 0,0:08:57.88,0:09:00.78,Default,,0000,0000,0000,,want to to do right by these kids. Dialogue: 0,0:09:00.78,0:09:05.15,Default,,0000,0000,0000,,It's impossible to know\Nthe particulars of every case, Dialogue: 0,0:09:05.15,0:09:08.46,Default,,0000,0000,0000,,but I do know the physics of judgement. Dialogue: 0,0:09:08.46,0:09:12.80,Default,,0000,0000,0000,,I know that, when we're treating\Nother people as things to be fixed, Dialogue: 0,0:09:12.80,0:09:15.92,Default,,0000,0000,0000,,we're probably treating\Nourselves the same way. Dialogue: 0,0:09:15.92,0:09:17.89,Default,,0000,0000,0000,,When we think that we're not good enough, Dialogue: 0,0:09:17.89,0:09:20.08,Default,,0000,0000,0000,,we think that other people\Naren't good enough, Dialogue: 0,0:09:20.08,0:09:22.14,Default,,0000,0000,0000,,and then we start thinking\Nthat other people Dialogue: 0,0:09:22.14,0:09:24.17,Default,,0000,0000,0000,,see other people as not good enough. Dialogue: 0,0:09:24.17,0:09:30.55,Default,,0000,0000,0000,,And that spirals into worries of people\Nseeing this child as not good enough, Dialogue: 0,0:09:30.55,0:09:33.78,Default,,0000,0000,0000,,wondering if this kid will be teased, Dialogue: 0,0:09:33.78,0:09:37.53,Default,,0000,0000,0000,,wondering what will happen\Na baby-sitter changes their diaper, Dialogue: 0,0:09:38.63,0:09:41.73,Default,,0000,0000,0000,,wondering what will happen\Nwhen a colleague notices Dialogue: 0,0:09:41.73,0:09:43.36,Default,,0000,0000,0000,,that this man pees sitting down Dialogue: 0,0:09:43.36,0:09:46.39,Default,,0000,0000,0000,,or when a partner sees\Nthis woman's slightly enlarged clitoris Dialogue: 0,0:09:46.39,0:09:48.06,Default,,0000,0000,0000,,for the first time. Dialogue: 0,0:09:48.95,0:09:51.55,Default,,0000,0000,0000,,These fears are real, Dialogue: 0,0:09:51.55,0:09:54.70,Default,,0000,0000,0000,,and I have faced similar ones\Nin my own life, Dialogue: 0,0:09:55.66,0:09:58.06,Default,,0000,0000,0000,,but we are miracles, Dialogue: 0,0:09:58.06,0:10:00.56,Default,,0000,0000,0000,,made up of particles smaller\Nthan we can conceive of, Dialogue: 0,0:10:00.56,0:10:03.21,Default,,0000,0000,0000,,from stars larger\Nthan we can possibly imagine, Dialogue: 0,0:10:03.21,0:10:05.57,Default,,0000,0000,0000,,and we don't have to get caught up Dialogue: 0,0:10:05.57,0:10:08.18,Default,,0000,0000,0000,,in the in-between spaces\Nof inches and pounds. Dialogue: 0,0:10:08.18,0:10:11.58,Default,,0000,0000,0000,,We can remember that all of us,\Nmale, female, intersex, Dialogue: 0,0:10:11.58,0:10:13.45,Default,,0000,0000,0000,,are not things to be fixed. Dialogue: 0,0:10:13.45,0:10:15.62,Default,,0000,0000,0000,,We are people to be loved. Dialogue: 0,0:10:16.25,0:10:19.26,Default,,0000,0000,0000,,And if you believe\Nthat you're a person to be loved Dialogue: 0,0:10:19.26,0:10:21.49,Default,,0000,0000,0000,,and treat yourself\Nwith kindness and patience, Dialogue: 0,0:10:21.49,0:10:23.90,Default,,0000,0000,0000,,then you'll treat\Nother people the same way. Dialogue: 0,0:10:23.90,0:10:26.28,Default,,0000,0000,0000,,And that's what\Nintersex people really need, Dialogue: 0,0:10:26.28,0:10:30.02,Default,,0000,0000,0000,,because decisions about our bodies\Nare being made by people like you. Dialogue: 0,0:10:30.02,0:10:31.28,Default,,0000,0000,0000,,Thank you. Dialogue: 0,0:10:31.28,0:10:33.66,Default,,0000,0000,0000,,(Cheers) (Applause)