1 00:00:00,596 --> 00:00:02,396 I know exactly what you're saying when you 2 00:00:02,548 --> 00:00:04,902 say when you're sitting at home writing 3 00:00:04,902 --> 00:00:06,949 and you're not like, I'm deaf, I'm deaf 4 00:00:06,949 --> 00:00:08,784 I say the same for me When I'm 5 00:00:08,784 --> 00:00:10,197 sitting down doing my makeup 6 00:00:10,197 --> 00:00:13,083 I'm not like uh I'm blind, I'm blind 7 00:00:13,113 --> 00:00:15,219 Like, I'm not thinking about my 8 00:00:15,219 --> 00:00:17,340 blindness, I'm just living my life 9 00:00:17,340 --> 00:00:20,754 because this is our normal (Music) 10 00:00:24,956 --> 00:00:27,072 Hello everybody, we are back 11 00:00:27,072 --> 00:00:29,089 with my series , when I sit down 12 00:00:29,089 --> 00:00:30,505 with another person 13 00:00:30,505 --> 00:00:32,039 from the disability community 14 00:00:32,039 --> 00:00:33,855 and we disscuss all things 15 00:00:33,855 --> 00:00:36,022 life and disability related 16 00:00:36,022 --> 00:00:38,439 and this one is probably the 17 00:00:38,439 --> 00:00:41,639 most requested that I've seen. 18 00:00:41,639 --> 00:00:44,646 So we finally have Jessica 19 00:00:44,646 --> 00:00:46,433 and I'm gonna let you say your 20 00:00:46,433 --> 00:00:48,024 last name 21 00:00:48,024 --> 00:00:52,475 (Laughs) Jessica Kellgren-Fozard 22 00:00:52,475 --> 00:00:54,928 It's ok, I know, it's a difficult surname 23 00:00:54,928 --> 00:00:58,311 we literally went over this before 24 00:00:58,311 --> 00:00:59,611 we started filming 25 00:00:59,611 --> 00:01:00,644 We've just been like talking on 26 00:01:00,644 --> 00:01:01,728 Google Meet 27 00:01:01,728 --> 00:01:04,095 And I was like, practicing the name 28 00:01:04,095 --> 00:01:05,378 and I was like no, you know what, 29 00:01:05,378 --> 00:01:07,228 I got here, I was too deep, 30 00:01:07,228 --> 00:01:08,211 I was like, I'm jumping 31 00:01:08,211 --> 00:01:09,325 out of the pool. 32 00:01:09,325 --> 00:01:11,145 She'll take over. So thank you- 33 00:01:11,145 --> 00:01:14,812 It's complex. The Kellgren bit is Swedish, 34 00:01:14,812 --> 00:01:16,695 the Fozard is my wife's surname, 35 00:01:16,695 --> 00:01:18,661 it's from Normandy, smush it together, 36 00:01:18,661 --> 00:01:20,078 it's complicated for everyone. 37 00:01:20,078 --> 00:01:22,711 Or Jessica Out Of The Closet, 38 00:01:22,711 --> 00:01:25,495 which I think is a brilliant name 39 00:01:25,495 --> 00:01:27,160 because not only are you one of 40 00:01:27,160 --> 00:01:30,357 the most fabulous fashionistas 41 00:01:30,357 --> 00:01:32,128 that I follow on social media, 42 00:01:32,128 --> 00:01:34,611 but you are also in fact out of 43 00:01:34,611 --> 00:01:37,344 the closet, and so I think it's just 44 00:01:37,344 --> 00:01:38,977 such a fun username. 45 00:01:38,977 --> 00:01:41,041 (Laughs) Yeah, 46 00:01:41,041 --> 00:01:42,944 out of the closet in many ways. 47 00:01:42,944 --> 00:01:44,428 Out of the gay closet, out of the 48 00:01:44,428 --> 00:01:46,977 disability closet, just living life open. 49 00:01:46,977 --> 00:01:48,874 That's the way to live life. 50 00:01:48,874 --> 00:01:50,677 Being your best, most authentic, 51 00:01:50,677 --> 00:01:52,960 confident queen self. And that is 52 00:01:52,960 --> 00:01:54,693 exactly what you do. 53 00:01:54,693 --> 00:01:57,010 I watch your videos and I 54 00:01:57,010 --> 00:01:59,027 legitimately laugh out loud. 55 00:01:59,027 --> 00:02:01,360 Like you're one of, not only the most 56 00:02:01,360 --> 00:02:03,193 fashionable people I follow but one of 57 00:02:03,193 --> 00:02:04,889 the funniest people I follow, 58 00:02:04,889 --> 00:02:07,810 and I think that you, just by simply 59 00:02:07,810 --> 00:02:10,760 being you, break so many disability 60 00:02:10,760 --> 00:02:14,205 stereotypes and misconceptions, 61 00:02:14,205 --> 00:02:17,343 and I think it's so fabulous for just- 62 00:02:17,343 --> 00:02:18,577 so thank you for just exisiting 63 00:02:18,577 --> 00:02:19,960 on the internet. 64 00:02:19,960 --> 00:02:22,393 (Laughs) I mean, I could say 65 00:02:22,393 --> 00:02:24,376 the same thing about you, Molly. 66 00:02:24,376 --> 00:02:26,277 I woke up this morning and I was like, 67 00:02:26,277 --> 00:02:28,278 OK, Molly, you have to try to look, like, 68 00:02:28,278 --> 00:02:30,710 a little bit half fabulous 69 00:02:30,710 --> 00:02:32,609 because you're going to be sitting next to 70 00:02:32,609 --> 00:02:34,309 Jessica in a video and it's going 71 00:02:34,309 --> 00:02:35,627 to be embarrassing. 72 00:02:35,627 --> 00:02:38,793 Oh no, I think you are incredibly stylish, 73 00:02:38,793 --> 00:02:40,526 I must say. I always enjoy 74 00:02:40,526 --> 00:02:41,572 your Instagram as well. 75 00:02:41,572 --> 00:02:43,593 Thank you, I appreciate it. 76 00:02:43,593 --> 00:02:46,475 So, I know a ton of my audience 77 00:02:46,475 --> 00:02:48,027 knows and loves your content already 78 00:02:48,027 --> 00:02:50,176 but for those who don't, would you like to 79 00:02:50,176 --> 00:02:52,276 kind of give the brief introduction of who 80 00:02:52,276 --> 00:02:54,059 Jessica is in a nutshell. 81 00:02:54,059 --> 00:02:56,043 My goodness, okay, the elevator pitch 82 00:02:56,043 --> 00:02:58,526 of me, then, I guess. 83 00:02:58,526 --> 00:03:00,577 So, I'm Jessica, I'm a YouTuber, 84 00:03:00,577 --> 00:03:02,609 content creator. I make content that is 85 00:03:02,609 --> 00:03:06,742 generally fun, informative, educational, 86 00:03:06,742 --> 00:03:09,426 amusing, around things that are to do with 87 00:03:09,426 --> 00:03:12,059 disability, chronic illness, and LGBTQ+ 88 00:03:12,059 --> 00:03:15,092 issues. So I have two genetic conditions, 89 00:03:15,092 --> 00:03:16,975 hereditary neuropathy with pressure 90 00:03:16,975 --> 00:03:19,326 palsies, which means that there are gaps 91 00:03:19,326 --> 00:03:22,310 in the myelin sheaths around your nerves. 92 00:03:22,310 --> 00:03:24,825 For me that means that I can paralyze 93 00:03:24,825 --> 00:03:27,509 parts of myself, that my nerves are more 94 00:03:27,509 --> 00:03:29,943 easily damaged, which does things like 95 00:03:29,943 --> 00:03:32,559 affect my hearing and I have loss of 96 00:03:32,559 --> 00:03:34,959 vision in one eye because of it, and it 97 00:03:34,959 --> 00:03:37,174 can do things like my hands don't have 98 00:03:37,174 --> 00:03:39,825 any feeling because I paralyzed both of 99 00:03:39,825 --> 00:03:41,691 my arms for a year and a half when I was 100 00:03:41,691 --> 00:03:44,076 a teenager. And they came back to a 101 00:03:44,076 --> 00:03:47,410 certain degree, but they can't now feel 102 00:03:47,410 --> 00:03:49,105 anything, so it's like wearing gloves 103 00:03:49,105 --> 00:03:50,908 all of the time. And I don't get hot and 104 00:03:50,908 --> 00:03:53,142 cold, any of those kinds of things, 105 00:03:53,142 --> 00:03:55,442 or wet. Which is really annoying when 106 00:03:55,442 --> 00:03:57,392 you're trying to hang up the washing, 107 00:03:57,392 --> 00:03:58,443 'cause you're like, is this wet? 108 00:03:58,443 --> 00:04:00,991 Is this dry? Absolutely no idea. 109 00:04:00,991 --> 00:04:02,909 And I end up having to like, press my face 110 00:04:02,909 --> 00:04:05,009 to all of my laundry to see whether it's 111 00:04:05,009 --> 00:04:07,792 dry or not. Very strange thing. 112 00:04:07,792 --> 00:04:10,508 And then you just get a random cheek stain 113 00:04:10,508 --> 00:04:12,225 or random foundation stain on the side 114 00:04:12,225 --> 00:04:13,389 of your white shirt. 115 00:04:13,389 --> 00:04:15,474 I mean, I should add, I only do this when 116 00:04:15,474 --> 00:04:17,974 I'm not wearing makeup. (Laughs) 117 00:04:17,974 --> 00:04:19,158 Pro tip. 118 00:04:19,158 --> 00:04:21,625 And then I also have Ehlers Danlos 119 00:04:21,625 --> 00:04:24,473 Syndrome, which is about my connective 120 00:04:24,473 --> 00:04:26,523 tissue, and means that not only am I 121 00:04:26,523 --> 00:04:30,259 hyper mobile, and very flexible and bendy, 122 00:04:30,259 --> 00:04:32,106 which most people think is like, whoa, 123 00:04:32,106 --> 00:04:34,179 what a great party trick, and it is, 124 00:04:34,179 --> 00:04:36,519 it's a pretty good party trick that I 125 00:04:36,519 --> 00:04:39,051 perhaps overused when I was a child. 126 00:04:39,051 --> 00:04:41,522 I dislocated various things just to prove 127 00:04:41,522 --> 00:04:43,626 to people that I could. Don't do that. 128 00:04:43,626 --> 00:04:45,397 That's a terrible idea. Don't do that. 129 00:04:45,397 --> 00:04:48,815 But it also affects connective tissue in 130 00:04:48,815 --> 00:04:51,223 things like my internal organs, 131 00:04:51,223 --> 00:04:53,397 so I have some issues with my heart, and 132 00:04:53,397 --> 00:04:56,145 I have postural orthostatic tachycardia 133 00:04:56,145 --> 00:04:58,240 syndrome, which comes from that, 134 00:04:58,240 --> 00:05:02,079 which is just a regulating blood pressure 135 00:05:02,079 --> 00:05:07,296 issue, so I faint a lot. And I can't exert 136 00:05:07,296 --> 00:05:10,128 myself too much, basically I go up two 137 00:05:10,128 --> 00:05:12,245 flights of stairs and I'm like, oh gosh, 138 00:05:12,245 --> 00:05:14,061 there's a heart attack coming. 139 00:05:14,061 --> 00:05:15,512 Ok, wonderful, and then I've got to lie 140 00:05:15,512 --> 00:05:17,094 on the floor for half an hour. 141 00:05:17,094 --> 00:05:19,558 And the vintage fashion is just a layer 142 00:05:19,558 --> 00:05:21,894 over the top, just to make everything look 143 00:05:21,894 --> 00:05:23,018 gorgeous while we're here. 144 00:05:23,018 --> 00:05:24,243 I think you should 145 00:05:24,243 --> 00:05:25,723 make more fashion content. 146 00:05:25,723 --> 00:05:27,411 I'm putting the pitch in now, 147 00:05:27,411 --> 00:05:28,976 and I think a lot of people 148 00:05:28,976 --> 00:05:30,946 in the comments will agree 149 00:05:30,946 --> 00:05:33,006 that you should have like a whole segment 150 00:05:33,006 --> 00:05:34,789 of your channel devoted to 151 00:05:34,789 --> 00:05:37,929 fashion content because we need that 152 00:05:37,929 --> 00:05:39,729 vintage inspo that you bring, 153 00:05:39,730 --> 00:05:42,250 we need your vintage wisdom. 154 99:59:59,999 --> 99:59:59,999