I know exactly what you're saying when you say like when you're sitting at home writing you're not like, I'm deaf, I'm deaf I'm deaf, I say the same for me like when I'm sitting around doing my makeup I'm not like ooh I'm blind, I'm blind Like, I'm not thinking about my blindness, I'm just living my life because this is our normal (Music) Hello everybody, we are back with my series , where I sit down with another person from the disability community and we disscuss all things life and disability related and this one is probably the most requested that I've seen. So we finally have Jessica and I'm gonna let you say your last name (Laughs) Jessica Kellgren-Fozard It's ok, I know, it's a difficult surname we literally like went over this before we started filming We've just been like talking on Google Meet And I was like, practicing the name and I was like no, you know what, I got here, I was too deep, I was like, I'm jumping out of the pool. She'll take over. So thank you- It's ok. It's complex. The Kellgren bit is Swedish, the Fozard is my wife's surname, it's from Normandy, smush it together, it's complicated for everyone. Or Jessica Out Of The Closet, which I think is a brilliant name because not only are you one of the most fabulous fashionistas that I follow on social media, but you are also in fact out of the closet, and so I think it's just such a fun username. (Laughs) Yeah, out of the closet in many ways. Out of the gay closet, out of the disability closet, just living life open. That's the way to live life. Being your best, most authentic, confident queen self. And that is exactly what you do. I watch your videos and I legitimately laugh out loud. Like you're one of, not only the most fashionable people I follow but one of the funniest people I follow, and I think that you, just by simply being you, break so many disability stereotypes and misconceptions, and I think it's so fabulous for just- so thank you for just exisiting on the internet. (Laughs) I mean, I could say the same thing about you, Molly. I woke up this morning and I was like, OK, Molly, you have to try to look, like, a little bit half fabulous because you're going to be sitting next to Jessica in a video and it's going to be embarrassing. Oh no, I think you are incredibly stylish, I must say. I always enjoy your Instagram as well. Thank you, I appreciate it. So, I know a ton of my audience knows and loves your content already but for those who don't, would you like to kind of give the brief introduction of who Jessica is in a nutshell. My goodness, okay, the elevator pitch of me, then, I guess. So, I'm Jessica, I'm a YouTuber, content creator. I make content that is generally fun, informative, educational, amusing, around things that are to do with disability, chronic illness, and LGBTQ+ issues. So I have two genetic conditions, hereditary neuropathy with pressure palsies, which means that there are gaps in the myelin sheaths around your nerves. For me that means that I can paralyze parts of myself, that my nerves are more easily damaged, which does things like affect my hearing and I have loss of vision in one eye because of it, and it can do things like my hands don't have any feeling because I paralyzed both of my arms for a year and a half when I was a teenager. And they came back to a certain degree, but they can't now feel anything, so it's like wearing gloves all of the time. And I don't get hot and cold, any of those kinds of things, or wet. Which is really annoying when you're trying to hang up the washing, 'cause you're like, is this wet? Is this dry? Absolutely no idea. And I end up having to like, press my face to all of my laundry to see whether it's dry or not. Very strange thing. And then you just get a random cheek stain or random foundation stain on the side of your white shirt. I mean, I should add, I only do this when I'm not wearing makeup. (Laughs) Pro tip. And then I also have Ehlers Danlos Syndrome, which is about my connective tissue, and means that not only am I hyper mobile, and very flexible and bendy, which most people think is like, whoa, what a great party trick, and it is, it's a pretty good party trick that I perhaps overused when I was a child. I dislocated various things just to prove to people that I could. Don't do that. That's a terrible idea. Don't do that. But it also affects connective tissue in things like my internal organs, so I have some issues with my heart, and I have postural orthostatic tachycardia syndrome, which comes from that, which is just a regulating blood pressure issue, so I faint a lot. And I can't exert myself too much, basically I go up two flights of stairs and I'm like, oh gosh, there's a heart attack coming. Ok, wonderful, and then I've got to lie on the floor for half an hour. And the vintage fashion is just a layer over the top, just to make everything look gorgeous while we're here. I think you should make more fashion content. I'm putting the pitch in now, and I think a lot of people in the comments will agree that you should have like a whole segment of your channel devoted to fashion content because we need that vintage inspo that you bring, we need your vintage wisdom. I was just, like, as we were talking before we started filming, I was peppering her with questions about the vintage fashion scene because I am fascinated by it and whenever I've tried to do it, it has (pause) not necessarily panned out So, I feel like you should make fashion videos and yknow when I started doing fashion content it was kind of like a total mistake I wanted to make one video about, like, accessibility in online shopping and that was supposed to be it. But people requested me keep doing it and I was like "Well, If you want me to feed my addiction and talk about something I love, I am happy to do so" There is people in the disability activism community who have been upset by that. Like, they want me to kind of dedicate my channel to disability. And I can understand that, but to me, I am a human and disabilities are a very real, important topic to me and it affects my life daily, but so does fashion and the confidence that fashion gives me! So does makeup, so does my guide dog, so does dating, so do all these other aspects and I think it's very important for us, as a disability community, to show society the human side of our day-to-day life and the very normal, average human things that we love and that we partake in. Of course, of course I always link this back to children's books because I think it's the easiest way to understand people learning new concepts So, there are so many children's books that are about issues. It's about "Some people move in a wheelchair" or "some people have 2 mums" and kids don't love them, they don't want to read those books, because they're very much focused on "this one object that you need to learn." It's not fun! Whereas, when they are reading like a fun, adventure book where "oh. the main character just happens to have a disability" or just happens to have a different family setup to the nuclear family, then it's more engaging and they are more willing to learn things And I know the great things about having disabled content creators who are creating content that isn't just disability focused is that you are also bringing in people who wouldn't have necessarily have clicked on your video, being like "Ooh, I don't know, i don't know i wanna watch something about a blind person cause I've never really met a blind person and that could be awkward." But if it's a video where you are doing something else and they click in, they are like "Well, you know what, this is actually really interesting, Imma keep watching her other videos as well." And then, it's just a great way to lead people in, I think And they start to really be more involved in the issues, it's not something that's far away Now, it's "oh, my favourite content creator Molly also happens to have a disability and also happens to talk about that And now I've learnt things about it" So I always think that's the best way, but, actually, Molly, two birds, one stone, to do with this fashion thing, I think the next time you come to England, I'm gonna have to give you a vintage makeover. Oh my gosh, absolutely!! Once this whole madness in this world is done, and we're all vaccinated, I'm coming out to England, so I can finally see my brother for the first time in over a year. AND I can see you and we are doing the vintage makeover I'm absolutely holding you to that. But I could not agree more with what you've just said. My favourite thing about what I do is that I get to make learning fun for people. I get to teach people in a way that entertains them that truly is the best way to learn. That's how I always learned the most growing up I was never somebody who could sit in class and hear you talk to me about something. I need to be the one that was getting up and doing it I was a very kinesthetic learner I need to be actually doing the thing and immersed in it to be able to understand it and being able to hopefully be entertaining to people um, while they- they learn and open their minds to new ways of thinking is so rewarding so I completely agree with you And I always say we talk a lot in the disability community about the fact that y'know that we're quite low on the totem pole of causes and of things that people care about and talk about or know about. You know, you often see those like "Diversity panels" and it's like everything is shown ... except disability. And we're like "Hey now, "Hi" "Where are we at the table" I think so many different brands and companies think that they can kind of get away doing the absolute least when it comes to disability representation Whether that be in adverts or actually making things accessible. So many of them think "Oh, a person in a wheelchair and we're done. That's it we've represented every disabled person, we've covered everyone's needs, excellent. Of course our brand is friendly to the disabled community, we have a ramp!" And you're like, "Uh-huh, I see. And how are you helping every other disabled person?" Mhm, mhm. Like, people who use wheelchairs actually make up quite a small part of the disability population as a whole. And, people just cannot get this through their heads and, of course, having the disability symbol be a wheelchair, obviously a very visual way to get that across very neatly, but it does tend to make people forget everyone else. Yes and I- I don't know if this has been happening in England but over the pas number of years I've been seeing in North America one change is certain places are adding other stickers that represent other disabilities. Which is nice because for example on public transit, like a bus, I need to sit down, it's not a question I need to be able to sit. Because balance is a combination, as I'm sure you know as deaf woman, of ears and eyes. And so my balance, not being able to see is quite off. And so standing on a moving vehicle, even if I'm holding a pole, is just not really a thing for me. So I need sit. And so when I get on a bus with my guide dog, people used to not register that I was somebody who they needed to get out of the disability seating for. Um, so they would just continue to sit there. But now they've added these stickers where it's like a man with a cane a person in a wheelchair and there's somebody with a walker and I'm like Thank you for showing multiple visuals of what somebody who might need to sit in disability seating could present as. Yeah, I've definitely seen in the last few years that kind of not all disabilities are visible stickers on a lot more things in public places. And it's so good to see because I remember when I very first- so I kind of grew up with a disability but it wasn't, well I'm not going to say noticed, but it wasn't diagnosed until I was 17. And then when I was 17 and I suddenly had this big health crisis and very much did need to use, you know, disabled toilets and I need to have access to things. I had a lot of issues with this. Because people were constantly trying to stop me from using things saying "Oh that's not for you that's for disabled people." And I'm like I mean I am, I don't know what I can do to- to make this more obvious to people, that I'm really struggling and things would help me like this. So it's, it is really lovely to see now. I worry less about using disabled toilets in public when they have a "Not all disabilities are visible" sticker on them. Because the dirty jokes I've received coming out of a disabled toilet on two feet is like, ugh. Well I think part of the problem with that too is how many able-bodied people just do use the toilet for people with a disability? Um, so many, so many able bodied people do use different facilities that are accessible and designed for people who actually need them due to a disability. And, so now I think when people see somebody presenting as able-bodied, they just kind of assume they're able-bodied because of how many able-bodied people do take advantage of having a little extra wiggle room in the stall for when they're pooping and they don't want anyone to hear it and I'm like that's not what, that's not what that was for. It's not for all you extra shopping bags, ma'am. It's for people who require either the bar for support, who require the extra room for a support worker, for a service animal, for a mobility device. Like there's many reasons that that exists.