Being Deaf & Being Blind - Chatting Disability Stuff w/ Jessica Kellgren-Fozard!
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0:01 - 0:02I know exactly what you're saying when you
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0:03 - 0:05say when you're sitting at home writing
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0:05 - 0:07and you're not like, I'm deaf, I'm deaf
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0:07 - 0:09I say the same for me When I'm
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0:09 - 0:10sitting down doing my makeup
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0:10 - 0:13I'm not like uh I'm blind, I'm blind
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0:13 - 0:15Like, I'm not thinking about my
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0:15 - 0:17blindness, I'm just living my life
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0:17 - 0:21because this is our normal (Music)
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0:25 - 0:27Hello everybody, we are back
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0:27 - 0:29with my series , when I sit down
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0:29 - 0:31with another person
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0:31 - 0:32from the disability community
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0:32 - 0:34and we disscuss all things
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0:34 - 0:36life and disability related
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0:36 - 0:38and this one is probably the
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0:38 - 0:42most requested that I've seen.
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0:42 - 0:45So we finally have Jessica
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0:45 - 0:46and I'm gonna let you say your
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0:46 - 0:48last name
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0:48 - 0:52(Laughs) Jessica Kellgren-Fozard
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0:52 - 0:55It's ok, I know, it's a difficult surname
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0:55 - 0:58we literally went over this before
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0:58 - 1:00we started filming
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1:00 - 1:01We've just been like talking on
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1:01 - 1:02Google Meet
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1:02 - 1:04And I was like, practicing the name
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1:04 - 1:05and I was like no, you know what,
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1:05 - 1:07I got here, I was too deep,
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1:07 - 1:08I was like, I'm jumping
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1:08 - 1:09out of the pool.
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1:09 - 1:11She'll take over. So thank you-
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1:11 - 1:15It's complex. The Kellgren bit is Swedish,
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1:15 - 1:17the Fozard is my wife's surname,
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1:17 - 1:19it's from Normandy, smush it together,
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1:19 - 1:20it's complicated for everyone.
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1:20 - 1:23Or Jessica Out Of The Closet,
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1:23 - 1:25which I think is a brilliant name
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1:25 - 1:27because not only are you one of
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1:27 - 1:30the most fabulous fashionistas
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1:30 - 1:32that I follow on social media,
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1:32 - 1:35but you are also in fact out of
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1:35 - 1:37the closet, and so I think it's just
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1:37 - 1:39such a fun username.
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1:39 - 1:41(Laughs) Yeah,
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1:41 - 1:43out of the closet in many ways.
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1:43 - 1:44Out of the gay closet, out of the
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1:44 - 1:47disability closet, just living life open.
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1:47 - 1:49That's the way to live life.
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1:49 - 1:51Being your best, most authentic,
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1:51 - 1:53confident queen self. And that is
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1:53 - 1:55exactly what you do.
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1:55 - 1:57I watch your videos and I
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1:57 - 1:59legitimately laugh out loud.
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1:59 - 2:01Like you're one of, not only the most
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2:01 - 2:03fashionable people I follow but one of
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2:03 - 2:05the funniest people I follow,
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2:05 - 2:08and I think that you, just by simply
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2:08 - 2:11being you, break so many disability
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2:11 - 2:14stereotypes and misconceptions,
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2:14 - 2:17and I think it's so fabulous for just-
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2:17 - 2:19so thank you for just exisiting
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2:19 - 2:20on the internet.
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2:20 - 2:22(Laughs) I mean, I could say
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2:22 - 2:24the same thing about you, Molly.
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2:24 - 2:26I woke up this morning and I was like,
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2:26 - 2:28OK, Molly, you have to try to look, like,
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2:28 - 2:31a little bit half fabulous
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2:31 - 2:33because you're going to be sitting next to
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2:33 - 2:34Jessica in a video and it's going
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2:34 - 2:36to be embarrassing.
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2:36 - 2:39Oh no, I think you are incredibly stylish,
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2:39 - 2:41I must say. I always enjoy
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2:41 - 2:42your Instagram as well.
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2:42 - 2:44Thank you, I appreciate it.
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2:44 - 2:46So, I know a ton of my audience
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2:46 - 2:48knows and loves your content already
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2:48 - 2:50but for those who don't, would you like to
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2:50 - 2:52kind of give the brief introduction of who
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2:52 - 2:54Jessica is in a nutshell.
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2:54 - 2:56My goodness, okay, the elevator pitch
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2:56 - 2:59of me, then, I guess.
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2:59 - 3:01So, I'm Jessica, I'm a YouTuber,
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3:01 - 3:03content creator. I make content that is
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3:03 - 3:07generally fun, informative, educational,
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3:07 - 3:09amusing, around things that are to do with
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3:09 - 3:12disability, chronic illness, and LGBTQ+
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3:12 - 3:15issues. So I have two genetic conditions,
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3:15 - 3:17hereditary neuropathy with pressure
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3:17 - 3:19palsies, which means that there are gaps
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3:19 - 3:22in the myelin sheaths around your nerves.
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3:22 - 3:25For me that means that I can paralyze
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3:25 - 3:28parts of myself, that my nerves are more
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3:28 - 3:30easily damaged, which does things like
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3:30 - 3:33affect my hearing and I have loss of
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3:33 - 3:35vision in one eye because of it, and it
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3:35 - 3:37can do things like my hands don't have
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3:37 - 3:40any feeling because I paralyzed both of
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3:40 - 3:42my arms for a year and a half when I was
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3:42 - 3:44a teenager. And they came back to a
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3:44 - 3:47certain degree, but they can't now feel
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3:47 - 3:49anything, so it's like wearing gloves
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3:49 - 3:51all of the time. And I don't get hot and
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3:51 - 3:53cold, any of those kinds of things,
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3:53 - 3:55or wet. Which is really annoying when
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3:55 - 3:57you're trying to hang up the washing,
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3:57 - 3:58'cause you're like, is this wet?
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3:58 - 4:01Is this dry? Absolutely no idea.
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4:01 - 4:03And I end up having to like, press my face
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4:03 - 4:05to all of my laundry to see whether it's
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4:05 - 4:08dry or not. Very strange thing.
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4:08 - 4:11And then you just get a random cheek stain
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4:11 - 4:12or random foundation stain on the side
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4:12 - 4:13of your white shirt.
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4:13 - 4:15I mean, I should add, I only do this when
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4:15 - 4:18I'm not wearing makeup. (Laughs)
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4:18 - 4:19Pro tip.
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4:19 - 4:22And then I also have Ehlers Danlos
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4:22 - 4:24Syndrome, which is about my connective
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4:24 - 4:27tissue, and means that not only am I
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4:27 - 4:30hyper mobile, and very flexible and bendy,
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4:30 - 4:32which most people think is like, whoa,
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4:32 - 4:34what a great party trick, and it is,
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4:34 - 4:37it's a pretty good party trick that I
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4:37 - 4:39perhaps overused when I was a child.
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4:39 - 4:42I dislocated various things just to prove
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4:42 - 4:44to people that I could. Don't do that.
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4:44 - 4:45That's a terrible idea. Don't do that.
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4:45 - 4:49But it also affects connective tissue in
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4:49 - 4:51things like my internal organs,
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4:51 - 4:53so I have some issues with my heart, and
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4:53 - 4:56I have postural orthostatic tachycardia
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4:56 - 4:58syndrome, which comes from that,
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4:58 - 5:02which is just a regulating blood pressure
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5:02 - 5:07issue, so I faint a lot. And I can't exert
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5:07 - 5:10myself too much, basically I go up two
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5:10 - 5:12flights of stairs and I'm like, oh gosh,
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5:12 - 5:14there's a heart attack coming.
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5:14 - 5:16Ok, wonderful, and then I've got to lie
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5:16 - 5:17on the floor for half an hour.
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5:17 - 5:20And the vintage fashion is just a layer
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5:20 - 5:22over the top, just to make everything look
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5:22 - 5:23gorgeous while we're here.
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5:23 - 5:24I think you should
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5:24 - 5:26make more fashion content.
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5:26 - 5:27I'm putting the pitch in now,
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5:27 - 5:29and I think a lot of people
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5:29 - 5:31in the comments will agree
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5:31 - 5:33that you should have like a whole segment
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5:33 - 5:35of your channel devoted to
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5:35 - 5:38fashion content because we need that
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5:38 - 5:40vintage inspo that you bring,
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5:40 - 5:42we need your vintage wisdom.
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Not SyncedI was just, like, as we were talking
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Not Syncedbefore we started filming, I was
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Not Syncedpeppering her with questions
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Not Syncedabout the vintage fashion scene
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Not Syncedbecause I am fascinated by it
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Not Syncedand whenever I've tried to do it,
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Not Syncedit has (pause) not necessarily [I DONT UNDERTSAND THIS WORD]
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Not SyncedSo, I feel like you should make fashion videos and
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Not Syncedyou know what, when I started out doing fashion content
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Not Syncedit was kind of like a total mistake
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Not SyncedI wanted to make one video about, like,
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Not Syncedaccessibility in online shopping
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Not Syncedand that was supposed to be it.
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Not SyncedBut people requested me keep doing it
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Not Syncedand I was like
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Not Synced"Well, If you want me to feed my addiction
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Not Syncedand talk about something I love,
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Not SyncedI am happy to do so"
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Not SyncedThere is people in the disability activism community
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Not Syncedwho have been upset by that.
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Not SyncedLike, they want me to kind of dedicate
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Not Syncedmy channel to disability.
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Not SyncedAnd I can understand that, but
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Not Syncedto me, I am a human
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Not Syncedand disabilities are a very real,
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Not Syncedimportant topic to me
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Not Syncedand it affects my life daily,
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Not Syncedbut so does fashion
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Not Syncedand the confidence that fashion gives me!
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Not SyncedSo does makeup,
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Not Syncedso does my guide dog,
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Not Syncedso does dating,
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Not Syncedso do all these other aspects
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Not Syncedso I think it's very important
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Not Syncedfor us, as a disability community,
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Not Syncedto show society the human side
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Not Syncedof our day-to-day life
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Not Syncedand the very normal, average
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Not Syncedhuman things that we love
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Not Syncedand partake in.
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Not SyncedOf course, of course
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Not SyncedI always link this back to
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Not Syncedchildren's books
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Not Syncedbecause I think it's the easiest way
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Not Syncedto understand people learning new concepts
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Not SyncedSo, there are so many children's books
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Not Syncedthat are about issues.
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Not SyncedIt's about "some people move in a wheelchair"
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Not Syncedor "some people have 2 mums"
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Not Syncedand kids don't love them,
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Not Syncedthey don't want to read those books,
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Not Syncedbecause they are very much
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Not Syncedfocused on "this one object that you need
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Not Syncedto learn". It's not fun!
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Not SyncedWhereas, when they are reading like a fun, adventure
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Not Syncedbook, where OH the main character just
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Not Syncedhappens to have a disability
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Not Syncedor just happens to have a different
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Not Syncedfamily setup to the nuclear family,
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Not Syncedthen it's more engaging
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Not Syncedand they are more willing to learn things
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Not SyncedAnd I know the great things about
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Not Syncedhaving disabled content creators
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Not Syncedwho are creating content that
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Not Syncedisn't just disability focused
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Not Syncedis that you are also bringing in people
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Not Syncedwho wouldn't have necessarily clicked on your video,
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Not Syncedbeing like "OOH, I don;t know, I don't wanna
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Not Syncedwatch something about a blind person,
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Not Syncedcause I've never really met a blind person
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Not Syncedand that could be awkward."
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Not SyncedBut if it's a video where you are doing something else
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Not Syncedand they click in,
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Not Syncedthey are like
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Not Synced"WHAT, you know what,
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Not Syncedthis is actually really interesting,
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Not SyncedImma keep watching her
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Not Syncedother videos as well."
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Not SyncedAnd then, it's just a [ADJECTIVE] way
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Not Syncedto lead people in, I think
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Not SyncedAnd they start to really be
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Not Syncedmore involved in the issues,
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Not Syncedit's not something that's far away
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Not SyncedNow, it's "oh, my favourite
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Not Syncedcontent creator Molly
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Not Syncedalso happens to have
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Not Synceda disability and
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Not Syncedalso happens to talk about that
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Not SyncedAnd now I've learnt things about it"
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Not SyncedSo I always think that's the best way,
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Not Syncedbut, actually, Molly,
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Not Syncedtwo birds, one stone,
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Not Syncedto do with this fashion thing,
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Not SyncedI think the next time you come
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Not Syncedto England, I'm gonna give you
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Not Synceda vintage makeover.
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Not SyncedOH MY GOSH,
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Not Syncedabsolutely!!
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Not SyncedOnce this whole madness
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Not Syncedin this world is done,
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Not Syncedand we are all vaccinated,
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Not SyncedI'm coming out to England,
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Not Syncedso I can finally see my brother
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Not Syncedfor the first time
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Not Syncedin over a year.
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Not SyncedAND i can see you
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Not Syncedand we are doing the vintage makeover
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Not SyncedI'm absolutely holding you to that.
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Not SyncedBut I could not agree more with
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Not Syncedwhat you've just said.
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Not SyncedMy favourite thing about what
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Not SyncedI do is that I get to
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Not Syncedmake learning fun for people.
- Title:
- Being Deaf & Being Blind - Chatting Disability Stuff w/ Jessica Kellgren-Fozard!
- Description:
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- Video Language:
- English
- Team:
Captions Requested
- Duration:
- 39:13
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